- Producer25/05/2017My Journey with Multiple Sclerosis.I woke up this morning, and my right hand was completely dead. I mean like this dead tumor hanging off the end of my arm. Like a skin tag. No feeling—no sensation—and my mind was screaming something about writing. How am I going to write? The only...
Comments25/05/2017 #21 Todd JonesI am again left speechless, Joyce. You are both an inspiration and a warrior on many fronts. I also know that you are too proud to ask for help, so I will...
Please support Joyce and her extraordinary work through her Patreon website. She needs and deserves our help. https://www.patreon.com/user?u=589128425/05/2017 #20 Tricia Mitchell#19 Thank you for sharing those links, @Joyce 🐝 Bowen Brand Ambassador @ beBee I have some catching up to do in terms of reading and I will surely read these. I try to avoid content - I spent too much of my own life stuck in my life stories and therefore unable to move forward. If you are still researching, let me know and I'll share the e-book. If, because your disease is advancing fast, you're no longer researching, please ignore my earlier offer to share information. I truly wish you as much compassion as your body will allow, as you continue on your journey.25/05/2017 #19 Joyce 🐝 Bowen Brand Ambassador @ beBee#18 I have lesions on my spinal cord. My disease is advancing fast. If you read https://www.bebee.com/producer/@joyce-bowen/my-story-of-abuse View more#18 I have lesions on my spinal cord. My disease is advancing fast. If you read https://www.bebee.com/producer/@joyce-bowen/my-story-of-abuse. Then you know I suffered Complex Trauma. That was followed up by Institutional Trauma. I am Sarah in here. https://www.bebee.com/producer/@joyce-bowen/sarah-s-story That was followed up by years of this https://www.bebee.com/producer/@joyce-bowen/deception In which I helped many victims. Predation and MandatoryReporting help me remember Tina and John. It's been a long life. Close25/05/2017 #18 Tricia Mitchell#11 @Joyce 🐝 Bowen Brand Ambassador @ beBee Thank you for sharing your story with such vivid and graphic imagery. I share this information as you mentioned you studied MS in the 1970s. if you're still studying MS you may want to look at META-Health. Motorial Paralysis, the body is stuck. The brain layer is the cerebral cortex (the generic theme is our social interactions with others - it's the brain layer that is involved in most dis-eases). The specific conflict with the outer germ layer is a paralysing conflict.
There is a stress trigger, that sends us into the stress phase, then, if resolved, the regeneration trigger allows us to enter the regeneration (healing) phase and then return to health. But many of us get stuck before the body can restore health. In the stress phase there's paralysis & cell loss, in the healing phase there are things like convulsions, epileptic seizures and cell growth - the body is doing the opposite of what occurred in the stress phase, in an attempt to restore homeostasis.
A friend had MS, along with throat cancer. She had been abused by her family. You could hear it in her language'ing. She spoke of being unable to escape (&, of course, not being allowed to speak her truth, the throat is our communication centre). The trauma was locked in her body. I don't know if you've come across Neurologist Dr Rob Scaer's book? The Body Bears The Burden: Trauma, Dissociation and Disease (this is one of his presentations) https://youtu.be/Vr7lsIXazp8 Let me know if you are interested and I will share an ebook with you.25/05/2017 #11 Joyce 🐝 Bowen Brand Ambassador @ beBee#8 studied the disease relentlessly back in the 70s, but wanted to go into cancer research back then so dropped it. I'm appalled at the progress that has not been made. (By the way--always believed cancer would be cured through the immune system--still do)25/05/2017 #4 Joyce 🐝 Bowen Brand Ambassador @ beBee#3 I did slowly move past the loss of my dominant hand and try to work out ways to use the hand I'd have left. But the bigger picture looms large and I consistently will lose pieces of myself over time. My medical care is not impressive. Hasn't been for a very long time, but it is my hope and perception that it is getting better.25/05/2017 #3 Deb 🐝 Helfrich#2 You actually prescribed yourself a very powerful medicine in this reply. A word like FLARE produces an entirely different response in your subconscious and body. I remember during breakfast how you caught your own hyper-vigilance. Doing so will most assuredly be a lonely and ever-present process, but the opposite is relief.
Cultivate every single sigh of relief you can. There is energy and power and potential movement available past the sigh of relief that will elude you if you dwell in the absence of crucial body parts.
While the concept is simple, there is nothing but your own resilience in your drive to write that will propel you to learn how to relax when every instinct wants you to tense and tense harder.
Thanks for owning the resolve to push publish on this account, @Joyce 🐝 Bowen Brand Ambassador @ beBee. It matters. Your effort will ripple to others and within yourself.
- Producer19/05/2017The age of the ageI've been writing about ageism for years (and from both ends of the chronological spectrum). As a somewhat precocious young man, I believed that older workers were given more respect, and I strived to attain it. In my 40s, older workers seemed less...
Comments23/05/2017 #16 Martin Wright#15 I understandvypur frustration about the number of remakes. However it is nothing new. Cecille B DeMille remade "The Squaw Man" at least four times between 1913 and 1936. The Maltese Falcon had been made 6 Times before the Humphrey Bogart version - and that was just in the sound era. Sometimes people like an old atory but like to tell it differently.22/05/2017 #15 Peter Altschuler#11 @Martin Wright, in fairness to a sector of the HR community (mostly those who do retained search), capability is often given just as much weight as experience. I'm sure that's how Lou Gerstner went from Nabisco to IBM and resurrected the moribund company. It's the contingency and temp folks who do exactly what they're told by their clients -- "Must have background A, worked at a company like B, done tasks C, D, and E, and can't have more than X years of experience." If any of those criteria are missing, out goes the "we're proceeding with candidates who more closely match our requirements" message.
Yet my own experience with people in media is not as encouraging as yours. If I see another re-make of a film that's only 25 years old -- like the upcoming made-for-TV version of "Dirty Dancing" -- I'm gonna hafta hurt someone.
I've drawn blanks when I mention "a rosebud moment" or describe something as being "as non-repetitive as 'Begin the Beguine'" or say that "he's as cuddly as James Tyrone" or ask "have you left no sense of decency?" I was alive to hear the last one said "live," but the others occurred long before I was born.22/05/2017 #14 Peter Altschuler#10 @Robert Cormack, gray is a deceiver. My girlfriend in college began to go gray before she graduated. A colleague from my film producing days had gone totally gray by 28. And I could be un-gray in under 5 minutes if I uncapped a bottle of Just For Men.
But I'm proud of my gray. I earned every single hair of it (including all the ones that stopped growing).
What amazes me most is this anomaly: people in this country (who consider me, based solely on age, to be past prime) cast their votes for presidential candidates aged 69 and 70. I'm old enough to be president but too old to be of any value in my range of professions.
I take solace in this. At my last annual physical, my doctor said, "If I'd never seen you and only had your test results to go by, I'd guess you were about 23... and an elite athlete."21/05/2017 #13 Peter Altschuler#9 @Shelley Brown, Champagne, to me, is like its homonym -- sham pain -- and I realize those bubbles can vanish like a hypochondriacal malady in just a few hours. There also is something suggestively male about uncorking. That one explosive moment can't sustain itself for more than a moment.
That is why I gravitate toward wines like that ancient Lafite. It gains a somber mellowness, the taste of which lingers and stays with you for years. The memory alone can rejuvenate me.
Oldarexia's a wonderful neologism. Yet it sounds slightly abnormal -- like anorexia -- unless you interpret it as "a loss of oldness" (a quality I desperately want my body to learn so it matches the state of my mind).21/05/2017 #11 Martin WrightSometines it can vary with the young too. Especially elwhen they find out the latest thing was tried out years ago as wrll. But i have noticed those who work in media are fascinated by older culture but those in hr ytend to only think in the "now" . Jobs leading to perspective - or is it perspective leading to jobs.20/05/2017 #9 Shelley BrownBravo Peter! Absolutely love the story and the quote in the last paragraph! I just wrote a story about a word I made up called, Oldarexia. Guess this is on both of our minds. I think I would like to be an expensive old bottle of champagne in order to stay bubbly and spirited.20/05/2017 #7 Peter Altschuler#6 @Jim Murray, I ask myself the same thing. All the time. I ask it at my keyboard, at the gym, at auditions, over dinner, with my children.... The unfortunate answer is that a body at rest tends to remain on a fast track toward rest in peace. And I'm not ready for that.19/05/2017 #3 Tricia Mitchell#2 ah Peter in reading your reply i noticed a typo/ error in tense. I was referring to a time somewhere between the ages of 4-8 years old (I'm now on the other side of 45 & cant remember the last time we had a power cut!).
There are too many mindnumbing channels to surf & the tealights are for when Im feeling a little spiritual! Yes, I appreciate that you were addressing a serious subject. Thank you for sharing19/05/2017 #2 Peter Altschuler#1 Thanks, @Tricia Mitchell. I'm glad I could offer a bit of amusement (in the midst of a serious subject).
Unlike you, we have dozens of channels, but I read because there's nothing to watch... even when the power is on. And, like you, we have candles as much for emergencies as mood (plus the matches to light them).19/05/2017 #1 Tricia MitchellThank you for sharing this @Peter Altschuler. It made me smile. I grew up in an era where we kept candles not to add ambience or make the house smell nice, but as emergencies when power cuts struck. We have 3 TV channels and the last broadcast was about 11pm. I enjoyed your coding-colonoscopy humour.
- Producer13/05/2017Homelessness and MeWhile waiting for Hearth Home to respond to my requests for interviews, I have decided to share my journey through the system. So far it has been rife with disheartening,”NOs.” I stated my purpose for going homeless as the need for medical, food,...
Comments15/05/2017 #46 Lisa Vanderburg#42 & #43 Alas my writing gigs are all pro bono - curiosity led to an act of love, or rant of passion :) But if it helps I was lucky enough to get some heavy -hitters' (neuronoggin's) attention on LI (in the good ol' days), so now I get requests to 'Dr. Lisa' to publish - lol - medical publishing if far from free even if I was qualified!
What @Joyce 🐝 Bowen Brand Ambassador @ beBee needs is exposure; syndicated preferably. The 'gofundme' is already becoming passé, and Joyce's unsentimental, honest writing deserves the best platforms. There are bloggers that post in the Huff and other major newspapers, but I don't know if it's paid work. If this buzz ended up as a syndicated media piece, the public would be stirred to humanitarian ire and help would come naturally - by far the most honest act in our jaded world. Like John #44 said. What we need @Deb 🐝 Helfrich is an eager-beaver in the media world to get it noticed? I know nothing of that world alas...anybody??14/05/2017 #42 Deb 🐝 Helfrich#41 You know what would be helpful, @Lisa Vanderburg, when you have a moment! It would be great to understand how you got your writing gigs with YOPD and where you get the most 'support' when you share your work.
If we can help get Joyce's writing and name associated with an organization, it opens her up to more PR and more opportunities to get crowd sourced patron support for her writing.
I suspect most of it is about searching through websites these days, but a little mentoring from you on how you got your writing gigs might help her focus in on the best approach.14/05/2017 #41 Lisa VanderburgWow @Joyce 🐝 Bowen Brand Ambassador @ beBee...look at the good you have done with your immense courage! You have reminded us of how we should treat each other - individual to government! I just wish I could do....something; anything. As a species we have become more detached and less humane the more privileged we've become.And I agree Joyce - it's remarkably painful to lose 'stuff', even though you realize the insignificance in light of life. I do so feel for you..especially with books! Sorta like a timed tsunami..what do you leave?
#34 & 35 @Antoinette Capasso-Backdahl; thanks for your openness and courage! Both me & hubby are disabled (at the same time), so my heart goes out to you too.14/05/2017 #37 Joyce 🐝 Bowen Brand Ambassador @ beBeeTodd Jones
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#32 Thank you, Lisa. I hope everyone considers supporting Joyce's work through her patreon website. The measure of a society is how it treats its elderly.
https://www.patreon.com/user/posts?u=5891284 View moreTodd Jones
28 min #33
#32 Thank you, Lisa. I hope everyone considers supporting Joyce's work through her patreon website. The measure of a society is how it treats its elderly.
I would love to be able to stay in my home. Close14/05/2017 #36 Joyce 🐝 Bowen Brand Ambassador @ beBee#35 Yes--it is an unforgiving system. Even now I find the need to struggle to take care of myself. I have very little but will have much less soon enough. But I will have a bed and bathroom facilities. In contemplating what is truly needed, I am surprised at what I realize I can do without. But damn--I will miss my "stuff."14/05/2017 #35 Antoinette Capasso-Backdahl#31 They did not know that my dad set up TRW Consumer HQ and Branches and my mom worked for the Board of Education. I worked for the State and was governor appointed to the Behavioral Health and Therapy Board. Also, the Arab, Jewish, Gay and Military communities had saved my life and I could not be anti-Semitic or anti-government... but they none the less tried to paint me as such. Then, my husband came down with cancer and I was assaulted again. I then had to face the system once again, begging for help, as a family in crisis only to discover our previous hard work had fallen off an evolutionary path for various reasons. I myself am disabled and was penalized when an employer over stated my wages. Not only that, this employer advertises that they accept disabled and veterans but they have a hostile work environment with discriminatory practices. Staff calling those they serve as vultures and mocking people when safety practices are not adhered to. I was facing homelessness again and still have to figure out a way to sustain myself without depending on a system that is unforgiving and fluxes by the whim of politicking. It is nothing short of psychological torture. But that is something I can survive. I've done it before and I'll do it again. 2 of 214/05/2017 #34 Antoinette Capasso-Backdahl#31 I was homeless as a teen. I brushed myself off and got back up and became a professional, tucking everything away in my big toe, pretending nothing happened. Then my daughter was almost abducted which brought it all back. Then I had a nasty custody issue and my daughter was homeless, got mixed up with human trafficking. So, I chased her down and got her off the street, however, the system was less than helpful. I decided to try to fix this becoming part of the solution and joined the parent networks and got on the local councils and boards. One was the Children's Mental Health council and worked with families as an advocate to navigating the system. Talked to the community, stakeholders and shareholders communicating with policy makers... Parents shared their nightmares and I was perplexed but optimistic. Then we were caught in a mortgage fraud [they packaged a 2nd variable in our 1st fixed without our knowledge]. I tried to bring awareness to the parents & youths dilemma through the tea party as disabled and incarcerated and youth are suffragettes and lack lobbyists with money to fight on their behalf. This made me a target, I was naive, I'll admit it. However, they tried to defame me and paint me as a bigot and anti-government person. 1 of 214/05/2017 #29 Lisa Vanderburg#4 ya know @🐝 Fatima G. Williams; I find this the best news to come out of @Joyce 🐝 Bowen Brand Ambassador @ beBee tale; to educate others just how harsh life truly is with degenative/neurodegenerative/chronic disease....particularly Stateside. This is the real truth of it!14/05/2017 #28 Joyce 🐝 Bowen Brand Ambassador @ beBee#22 We are definitely headed towards becoming a third-world country. Just because we house our disabled between brick-and-mortar buildings they are not really seen. They're tended to be looked at as garbage to be swept away. We in the USA promote ourselves as so enlightened, but we are ignorant.
- 24/10/2016A reliable social network and the Mediterranean diet - what's not to like?7 Habits of People Who Age Welltime.com Strong social ties can increase your chance of living...
- 24/10/2016"It’s clear baby boomers aren’t getting the message that exercise is the fountain of youth. In fact, they’re repeating the mistakes of previous generations in believing that physical activity is more recreational than medicinal, despite the evidence suggesting otherwise."Fitness: Boomers — set your sights on successful agingmontrealgazette.com Most experts agree exercise can slow the physical effects of getting older, but baby boomers don’t seem to be getting the...
- 21/10/2016What a powerful canpaign.NYC Seniors on Twittertwitter.com “#ThursdayThoughts: Domestic abuse includes #ElderAbuse. It's wrong at any age. #DomesticViolenceAwarenessMonth...
- 20/10/2016Here's an interesting approach by some pilot projects for clients 65 and older.Uber and Lyft expand their push into rides for senior citizensmashable.com The ride-hailing companies want to reach a new market with specific transportation...
- 18/10/2016Interesting results in this study published by the Public Affairs Council. I was surprised to see disabilities and age so high on the list. Encouraging!Most Americans Believe Discrimination is a Serious Problem and that Businesses Can Do More to Prevent It ... - Public Affairs Councilpac.org FOR IMMEDIATE RELEASE October 17, 2016 CONTACT Laura Horsley Director of Marketing and Communications Public Affairs Council 202.787.5963 firstname.lastname@example.org Most Americans Believe Discrimination is a Serious Problem and Would Support More Efforts by...
- 17/10/2016Often times residents of assisted living facilities end up with an inappropriate level of care. Is this an oversight and monitoring issue or solely a lack of proper assessment upon admisson?Assisted Living Residents With Dementia Prone To Abusing Others, Study Findskhn.org Residents with dementia need to be monitored and increased training is needed for staff who care for them, said researchers who examined reported instances of abuse in assisted living...
- 16/10/2016When you're a parent, you are very familiar with the feeling of concern for your children. But what if you have a child or children who, despite their maturity in age, are unable to care for themselves while you are losing the ability and strength to care for them?Aging parents worry about who will care for their disabled childrenwww.washingtonpost.com Waiting lists for group homes and other services have thousands of names on...
- 16/10/2016I would hope to share thoughts, ideas, and trends about aging in this hive. What does aging with dignity or aging well mean?Making Aging Positivewww.theatlantic.com Many of my older-adult patients wanted to make a difference in the world but, finding no role for themselves, were treated as socially useless. Having created a new stage of life, the next step is to make it...
Aging With Dignity~ 100 buzzes
We all strive to live in dignity which is defined as the state or quality of being worthy of honor or respect. It is a human desire to be respected, to feel worthy. Many of today’s discussions examine a variety of groups, and if they are respected and afforded all the rights intended for individuals to enjoy. These groups are defined by race, nationality, immigration status, socio-economic status, gender, or religion. But what about a group that spans all artificial categorizations? What about that one group all of us hope to belong to one day?