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Invisible Illnesses: Fibromyalgia - beBee

Invisible Illnesses: Fibromyalgia

~ 100 buzzes
Oh! Your body hurts! You keep complaining, but what is Wrong? Do you have Fibro?
Buzzes
  1. Kirstie-Sweetie Louise Summers

    Anonymous

    29/09/2016
    I think living with a Invisible Illness is bad, because you have to try and explain it to everyone that all illnesses are not visible! If you love that person you should be there for them no matter what happens! Don't say "You don't look sick!" to them! It hurts people like me when you say that! Yes I am fighting a recent diagnoises of Fibromyalgia!

    It annoys me when people say to you "You should get out more!" or "You should go to bed early!" it's not that simple at all!

    I live with Fibro, Seizure's (uncontrolled), asthma, short term memory loss, Dairy & Lactose Intoloance, it isn't visible what i live with! Yes some people have seen me have a drop seizure and yes them too are not controlled! The Drs think I may even Have IBS!

    Pray for each other! Do not judge someone just by looking at them please! Thank you!
    Kirstie-Sweetie Louise Summers
    Relevant
  2. ProducerKirstie-Sweetie Louise Summers

    Anonymous

    26/08/2016
    Fibromyalgia!
    Fibromyalgia!Who Is Affected by Fibromyalgia?Experts estimate that at least 5 million American adults have Fibromyalgia. Of these, up to 90% are women. Fibromyalgia also seems to run in families, so a gene may be at least partly responsible for the condition....
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    Comments

    Dean Owen
    26/09/2016 #1 Dean Owen
    Thanks for alerting me to Fibromyalgia. I can't imagine what you have gone through. I love the "Fibro Warrior's" phrase you coined. Perhaps you could start a project using that name much like @Gary Sharpe View more
    Thanks for alerting me to Fibromyalgia. I can't imagine what you have gone through. I love the "Fibro Warrior's" phrase you coined. Perhaps you could start a project using that name much like @Gary Sharpe & @Deb Helfrich started "Out-Thinking Parkinson's" Close
  3. ProducerKirstie-Sweetie Louise Summers

    Anonymous

    26/08/2016
    Fibromyalgia!
    Fibromyalgia!Key Characteristics of Fibromyalgia!Muscle pain, throughout the body often with tenderness at certain points, is the primary symptom of fibromyalgia. It may range from mild discomfort to pain severe enough to limit work, social activities, and...
    Relevant
  4. ProducerKirstie-Sweetie Louise Summers

    Anonymous

    10/07/2016
    Only You Will Know The Steps You Take In Life!
    Only You Will Know The Steps You Take In Life!YOU are who you choose to be! No one else chooses for YOU!YOU make the right choices! No one else makes Your choices for YOU!YOU have to be prepared for life! Others will not prepare YOU!YOU will only find true love! No one else will find true love...
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    Comments

    Margaret Aranda, MD, PhD
    10/08/2016 #4 Margaret Aranda, MD, PhD
    Just came back to read this again ~ I shared to "Inspiration" for Invisible Illnesses, and encourage you to keep on being that beaming bee that lights up the darkness ~ that's what you do for me and for all other beeZ~ ♥️
    Margaret Aranda, MD, PhD
    20/07/2016 #2 Margaret Aranda, MD, PhD
    This is so empowering to come from a new young lady writer as you, @Kirstie-Sweetie Louise. Such passion, such activism, such encouragement and hope! I'm sure you have many stories to tell and wish you could join us in writing about your life. For in this way, we learn of one another, and the Beez can work like a Team of those who matter...we are not just Beez without a purpose and we have to know where others came from, in order to understand with respect! Great post, young lady! Bravo! Keep writing! 🌺Join Hive here: https://www.bebee.com/group/dr-margaret-aranda-stirring-authors-along / then go to the 🌺STARTING LINE: https://www.bebee.com/producer/@margaret-aranda/starting-line-writing-challenge-memoir-madness-is-on / then go here for 🌺Questions: https://www.bebee.com/producer/@margaret-aranda/questions-memoir-madness-q-a-here#comments ...and have fun! You'll be the youngest one! 🌺
  5. Kirstie-Sweetie Louise Summers

    Anonymous

    29/06/2016
    I think having Head pain is one of the most painful symptoms of Fibromyalgia, as it really hurts! It makes one very sleepy though!

    @Margaret Aranda, MD, PhD @Dale Masters
    Kirstie-Sweetie Louise Summers
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    Comments

    Margaret Aranda, MD, PhD
    26/08/2016 #1 Margaret Aranda, MD, PhD
    Fantastic Share! Fibro is becoming more and more well defined as many Invisible Illnesses are being re-assessed via infectious diseases! Thank you!
  6. Leckey Harrison

    Leckey Harrison

    27/06/2016
    Today in National PTSD Awareness Day. Traumatic stress isn't just the result of a singular event, or several of them. It is also the result of chronic unreleased stress. PTSD effects all of life, and it is curable. I know. Mine is the face of PTSD Leckey Harrison
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    Comments

    Leckey Harrison
    30/06/2016 #5 Leckey Harrison
    #4 You are welcome!
    Sara Jacobovici
    29/06/2016 #4 Sara Jacobovici
    Thank you @Leckey Harrison for not only having the courage to face PTSD and its effects but for enabling and inspiring others to do the same.
    Margaret Aranda, MD, PhD
    28/06/2016 #3 Margaret Aranda, MD, PhD
    I think that there is a huge demand for this Hive to overlap with my hive, "Veterans: Mental Health" but I ran out of Buzzes to share. Can @Leckey Harrison, @Sara Jacobovici, @Lisa Gallagher, @Brian McKenzie, @Randy Keho, @Mamen Delgado, and would like to run that by my loves: @Franci Eugenia Hoffman and @Ali Anani!
    Margaret Aranda, MD, PhD
    28/06/2016 #2 Margaret Aranda, MD, PhD
    @Leckey Harrison: ABSOLUTELY the "take-home" message of the month! Just as an anesthesiologist and trauma surgeon work together with the Operating Room nurses and surgical technicians, we too have to work on one human at a time, to "put them back together, healing their wounds." And we are DOING it! We don't just talk about it. We DO.
    Margaret Aranda, MD, PhD
    28/06/2016 #1 Margaret Aranda, MD, PhD
    Perfect scenario. Just perfect. And just as I dedicate a Buzz a week for our Veterans, the chronically ill, and the oppressed, I shall always be here, too. We don't need a National Day or a National Month to devote to honoring any of these issues. They are infinite and deserve great justice. Thank you for joining me, @Leckey Harrison! I can't thank your leadership enough!
  7. Kirstie-Sweetie Louise Summers

    Anonymous

    28/06/2016
    Please show your support to people with Fibromyalgia!

    Every day Fibro claims another persons life, as they can't do things on a daily basis anymore!
    There always in constant pain, with there: Ribs, Head, Shoulders etc!

    The only terrible thing about this illness, is that it is an Invisible Illness. So it's easy to mis-diagnosed for years!

    I know this because I happen to now live with Fibromyalgia after many painful and stressful GP trips!

    So Me and @Margaret Aranda, MD, PhD are here to spead as much awareness as we can about Invisible Illnesses!

    @Dale Masters
    Kirstie-Sweetie Louise Summers
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    Comments

    Margaret Aranda, MD, PhD
    26/08/2016 #1 Margaret Aranda, MD, PhD
    Just a little bit more info + another graph or anatomy pic = Honey, honey! Great share!
  8. Kirstie-Sweetie Louise Summers

    Anonymous

    17/06/2016
    We Are Strong! We Are Fighters! We Are FIBROMYALGIA WARRIORS!

    @Margaret Aranda, MD, PhD
    Kirstie-Sweetie Louise Summers
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    Comments

    Margaret Aranda, MD, PhD
    26/08/2016 #1 Margaret Aranda, MD, PhD
    You must fight every day! I know you can do it!
  9. Kirstie-Sweetie Louise Summers

    Anonymous

    16/06/2016
    Having Fibromyalgia & Chronic Pain is learnng to takke the pain that is so Unbareable to all Fibro suffers! Every day we all hope for a Chronic Pain Cure!

    One day we can do things (little things) like tiding, then after we can't do anything else the next day! There's Good & Bad days!

    With Fibro our bad days we need a friend to support us bescause we might look OK, but deep down we are always in pain Constantly. Sometimes our pain is Bareable sometimes it isn't.

    If you have a Friend who thinks she/he has Fibro please Support them as it is so difficult for us to get a diagnoses!

    @Margaret Aranda, MD, PhD
    Kirstie-Sweetie Louise Summers
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    Comments

    Margaret Aranda, MD, PhD
    26/08/2016 #3 Margaret Aranda, MD, PhD
    #2 Make sure you Share this on G+ and Facebook and Twitter by going to the icon to the left of the "speech bubble." I'd tweet this once/week!
    Margaret Aranda, MD, PhD
    17/06/2016 #1 Margaret Aranda, MD, PhD
    So so important! Compassion, patience, and awareness go a long way!
  10. Margaret Aranda, MD, PhD
    Shop Tate Publishing for Dr Margaret Aranda's books (5). A Stanford Medical Alumni in anesthesiology and critical care, her first book is her Memoir. It was written after a tragic car accident left her with a Traumatic Brain Injury, unable to walk or talk. Genres: Memoir, Christian Living, Children's Books, and Women's Health. One note: It is interesting to see how her brain heals over time. All books made Nancy Mills' Top 12 Spirited Woman Book Pick Lists.
    Margaret Aranda, MD, PhD
    Other Works
    www.drmargaretaranda.tateauthor.com
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    Comments

    Dale Masters
    20/06/2016 #29 Dale Masters
    #26 Going to the beach? I'm in.
    Margaret Aranda, MD, PhD
    16/06/2016 #28 Margaret Aranda, MD, PhD
    #27 @Mamen Delgado: Thanks for the smiles and laughter! I bet you were a happy and beautiful baby & I know your Mom is so proud of you!
    Mamen Delgado
    16/06/2016 #27 Mamen Delgado
    #26 Let's fly a kite!
    Margaret Aranda, MD, PhD
    16/06/2016 #26 Margaret Aranda, MD, PhD
    #25 Oh, @Mamen Delgado, hey...if it was you, I bet you'd still be complaining about the hospital food, too! lol I could be a stand-up comedian with all the stories I could tell. I somehow always leave people wondering if my stories are true....or false? Believe me, no one can make this stuff up! Let's ditch everyone and just go to the beach and fly a kite, yes? :-)!
    Mamen Delgado
    16/06/2016 #25 Mamen Delgado
    Oh my!! You are such an inspiration for me @Margaret Aranda, MD, PhD... Thanks so much for sharing your energy and the videos, I've been watching some of them and I'm speechless. Many blessings my dear!!
    Margaret Aranda, MD, PhD
    16/06/2016 #24 Margaret Aranda, MD, PhD
    #23 lol! Oh! Because @Nick Mlatchkov, I just decided that I'm never going to grow up! Wanna go chase the wind? Let's go! Tagging @Bill Stankiewicz, @Dale Masters, @Mamen Delgado, @Kirstie-Sweetie Louise, @Michele Williams & @John White, MBA, too! 1..2..3....Go!
    Nick Mlatchkov
    16/06/2016 #23 Anonymous
    #22 Thank u. Btw why u're gonna miss ur b-day?
    Margaret Aranda, MD, PhD
    15/06/2016 #22 Margaret Aranda, MD, PhD
    #20 @Nick Mlatchkov! Great question, sorry I just mentioned it in passing. Many churches have "Holy Oil" that they place on the forehead of a dying person. Since they thought I was actually in the process of dying on the ER bed, some would properly call it not the "Last Rites," but the "Sacrament of Extreme Unction." Usually a rite performed by the Catholic church, it is described here in brief: https://www.olrl.org/Lessons/Lesson27.shtml
    Margaret Aranda, MD, PhD
    15/06/2016 #21 Margaret Aranda, MD, PhD
    COUNTDOWN: 40 MIN:

    Show Title: "Grassroots Talks Radio"
    Hosted By Dr. Allen L. Brown and Co-Host Dr. Margaret Aranda
    Every Wedn at 11:30 am - noon (PST)

    Topic: WHAT IF GOD TOOK A DAY OFF?
    Callers! Call in (657) 383-0162

    We often have high expectations from God. Does He expect anything in return?
    http://www.blogtalkradio.com/grassrootstalks/2016/06/15/if-god-took-a-day-off
    Nick Mlatchkov
    15/06/2016 #20 Anonymous
    #12 @Margaret Aranda, MD, PhD can u elaborate on this? It doesn't ring a bell - 'Last Rights of oil being pressed onto my forehead'
    Margaret Aranda, MD, PhD
    14/06/2016 #19 Margaret Aranda, MD, PhD
    #18 Oh No! Don't make me shine my halo! lol Seriously, I love your opinions and writings and I want to be just like you when I grow up. Oh. But wait. I decided at age 31 that I'm never going to grow up....so ignoring my birthday in 9 days, I cherish all your comments. And I know you don't just 'hand out' compliments, so thank you for the early present :-)!
    Dean Owen
    14/06/2016 #18 Dean Owen
    #16 Great intro video! Your positivity and resilience is a shining example to all.
    Margaret Aranda, MD, PhD
    14/06/2016 #17 Margaret Aranda, MD, PhD
    Hey! Surprised me! A hearty RIGHT ON! to @Federico Álvarez San Martín for Sharing this to WRITERS and PUBLISHERS! Really kind of you! Muchas gracias!
    Margaret Aranda, MD, PhD
    14/06/2016 #16 Margaret Aranda, MD, PhD
    #15 So sweet of you. It's not me, it is God in me. Without Him, I would be dead. Here's my trailer for my 1st book, written from my brain-injured bed. You'll be surprised. https://youtu.be/4EVCZEtwe34
    Dean Owen
    14/06/2016 #15 Dean Owen
    Truly an inspiration. Speechless....
    Margaret Aranda, MD, PhD
    14/06/2016 #14 Margaret Aranda, MD, PhD
    #13 @Lisa Gallagher, as with all difficult journeys, I grew muscles from nowhere, all with the help of God. There's no other way I would have survived all the hurdles. So Thanks be to God! :-)
    Lisa Gallagher
    14/06/2016 #13 Lisa Gallagher
    #12 I'm glad you lived to tell the tale @Margaret Aranda, MD, PhD and I'm happy it changed your life in a positive manner. I'm just sorry that happened to you. It had to be tough.
    Margaret Aranda, MD, PhD
    14/06/2016 #12 Margaret Aranda, MD, PhD
    #11 Why thank you, @Lisa Gallagher but it wasn't my choice. The lady that hit me pressed the gas instead of the brakes when her fast food fell off the passenger seat....changing my life in an instant. I visited the door of Heaven when I almost died in the hospital, Last Rights of oil being pressed onto my forehead when I woke up.....and it is nice to know that my life right now makes a difference. I don't fear death, but I value each minute like never before.....
    Lisa Gallagher
    14/06/2016 #11 Lisa Gallagher
    Very impressive @Margaret Aranda, MD, PhD and happy for you, Congrats!
    Margaret Aranda, MD, PhD
    14/06/2016 #10 Margaret Aranda, MD, PhD
    @Nick Mlatchkov, thank you for sharing with your followers, too....just love the "Spirited Men" that are so supportive and encouraging! Today is only my ?4th day posting, so thank you for making me feel welcomed, too!
  11. Dr. Allen Brown

    Dr. Allen Brown

    15/06/2016
    Tune into our next radio broadcast
    Show Title: "Grassroots Talks Radio"
    Hosted By Dr. Allen L. Brown and co-host Dr. A
    Starts at 11:30 am to noon PST
    Topic: What is God took a day off?
    Call in (657) 383-0162

    We often have high expatiation from God. Does he expect anything in return.
    Dr. Allen Brown
    If God Took A Day Off
    www.blogtalkradio.com Ask not what god can do for you but what you can do for God. We ask a lot from God but do we ever ask God what we can do for...
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    Comments

    Margaret Aranda, MD, PhD
    16/06/2016 #5 Margaret Aranda, MD, PhD
    THE DR MARGARET ARANDA SHOW, with Dr A as Co-Host!
    Grassroots TalkRadio Hosted by @Dr. Allen Brown

    What if God took a day off?
    What are the most important issues to consider?
    Let us be logical first....we can not let chaos run.
    Margaret Aranda, MD, PhD
    16/06/2016 #4 Margaret Aranda, MD, PhD
    Anyone can listen to the Show at any time, by simply clicking on it for a fast 30-min talk that feels like a 10 min talk! Love to all!
    Margaret Aranda, MD, PhD
    15/06/2016 #3 Margaret Aranda, MD, PhD
    What if God took a Day Off?
    Listen to Dr Margaret Aranda LIVE
    COUNTDOWN: 1 hour

    Please Share, Tweet, G+, LinkedIn...
    Let us look up.
    Call In number for Listeners: America: (657) 383-0162
    Dr. Allen Brown
    15/06/2016 #2 Anonymous
    Tune into my next radio broadcast tomorrow Start 11:30am till noon PST
    Hosted by Dr. Allen L. Brown with Co-host Dr. A
    Join us in a discussion as we ask a very simple question. We ask a lot from God . What if God Took A Day Off?
    Call in to listen by dialing (657) 383-0162 or just click the link below. Fasten your seat belts. We talk about issues and topics others won't touch.
  12. ProducerKirstie-Sweetie Louise Summers

    Anonymous

    12/06/2016
    Getting A Diagnoses for Fibromyalgia!
    Getting A Diagnoses for Fibromyalgia!My Story for getting a diagnoses of Fibromyalgia.  My story starts when 4 years ago after I had really bad pain that I couldn't explain how I could be in this most pain. I took plenty of trips to the Doctors and they were saying "well you look fine,...
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    Comments

    Margaret Aranda, MD, PhD
    26/08/2016 #8 Margaret Aranda, MD, PhD
    #7 Hey! "Producer" here! Keep on going! What can any patient do for headaches in the summer or the winter? Migraine headaches. :)
    Margaret Aranda, MD, PhD
    16/06/2016 #6 Margaret Aranda, MD, PhD
    #4 Love the purple butterfly, and your Personal Testimony is awesome. You go, girl!
    Margaret Aranda, MD, PhD
    15/06/2016 #5 Margaret Aranda, MD, PhD
    #2 Anyway, no 'sorries' needed with me, hun. You know that :-).
    Margaret Aranda, MD, PhD
    12/06/2016 #1 Margaret Aranda, MD, PhD
    And how many times did I tell you to go to a FaceBook group and talk to other patients with fibromyalgia, hon @Kirstie-Sweetie Louise? I know it was hard to admit you needed it. But you just HAD to fight. I couldn't just let you go limp on me!
  13. Margaret Aranda, MD, PhD
    Welcome, @Kirstie-Sweete Louise to increase awareness, research, and a cure for patients with fibromyalgia! Together, we are strong and we can Bzzz around and make lots of honey! Margaret Aranda, MD, PhD
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    Margaret Aranda, MD, PhD
    13/06/2016 #5 Margaret Aranda, MD, PhD
    #4 It would be helpful to this Hive Community if we could learn more...have you spoken to others in Fibro Groups about the drug/Rx? What is anticipated from the groups? And of course, I do hope that it helps...we all do. Lots of times for Pain Management, Pain Doctors prescribe 'depression medications' at low doses, because they work for lots of Pain patients. So the important thing to note here is: Just because your doctor prescribes you a "Depression Rx" that does NOT mean anyone should feel ashamed, or think "I'm not depressed!" The doctor isn't using the drug for depression. She is using it for another reason. I want to make sure that point is really well clarified here, so that more patients actually fill the prescriptions and then actually take the medications.
    Margaret Aranda, MD, PhD
    13/06/2016 #2 Margaret Aranda, MD, PhD
    #1 Such a pleasure to have you here, and please feel comfortable to share your feelings & your journey. I know it will help many.
  14. Kirstie-Sweetie Louise Summers

    Anonymous

    12/06/2016
    Having people who believe we have an Invisible Illness like Fibromyalgia is a great thing to have! The people who don't believe you are the worst people to be around and we have to rather try and do our best to explain it to them, then after you've explained it and they are still in denial you have to walk away! People need to be aware much much more of this Invisible Illness so that they can be there for us on our bad days! Please Help Us Raise Awareness Of Invisible Illness & Chronic Pain! Help People Like Me Find A Cure To Treat Fibromyalgia! Thank You!

    @Margaret Aranda, MD, PhD
    Kirstie-Sweetie Louise Summers
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    Margaret Aranda, MD, PhD
    26/08/2016 #8 Margaret Aranda, MD, PhD
    #7 You'll see more people coming to beBee ~ keep an eye out for others in your FB Groups as this is more personal and professional, too.
    Margaret Aranda, MD, PhD
    17/06/2016 #6 Margaret Aranda, MD, PhD
    #4 Awweeee. Hugs and Cuddles.
    Margaret Aranda, MD, PhD
    15/06/2016 #3 Margaret Aranda, MD, PhD
    #2 And.... "I Believe YOU!"
    Margaret Aranda, MD, PhD
    14/06/2016 #1 Margaret Aranda, MD, PhD
    So true! In time, we'll buzz more & get more bees & ideas & produce honey, too! It can only get better now!
  15. Margaret Aranda, MD, PhD
    Here is a popular video on Fibromyalgia, so that family, friends, and Caregivers can understand a little. But don't be surprised, Patients with FIbro, if your 'circle of friends who care' gets smaller and smaller as the years go by. Just remember that you're not alone! We're always here, and so are many others! Never Give Up! @Kirstie-Sweete Louise, @Randy Smith
    Fibromyalgia Awareness
    Fibromyalgia Awareness May 12 is National Fibromyalgia Awareness Day Make Fibro Visible!! National Fibromyalgia Association: http://www.fmaware.org But You Don't Look Sick / Spoon...
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    Margaret Aranda, MD, PhD
    12/06/2016 #2 Margaret Aranda, MD, PhD
    This is highly recommended for someone with a new diagnosis of Fibromyalgia, and thank you to @Kirstie-Sweete Louise for choosing this selection for our group!
  16. Kirstie-Sweetie Louise Summers

    Anonymous

    11/06/2016
    My Story for getting a diagnoses of Fibromyalgia.

    My story starts when 4 years ago after I had really bad pain that I couldn't explain how I could be in this most pain. I took plenty of trips to the Doctors and they were saying "well you look fine, I'll give you some strong painkillers" now at this time I didn't know I was becoming Sensitive to all medications. They kept on giving me painkillers and I came to the point where i was getting to tired to do anything. The painkillers were making me so drowsy.

    Moving on, I changed my Doctors surgery so many times that I didn't like to go to the Doctors anymore.

    2014 I met @Margaret Aranda, MD, PhD on facebook and she helped me through everything.

    2015 Margaret said "I think you may have Fibro" I was confused because I had never herd of Fibro before. So she put me in touch with some one she knew could help me! I talked to her and she said the same thing.

    Moving on to 2016: Now I still wasn't getting anywhere with my pain, so I saw my Neurologist and discussed Fibromyalgia with him and he said "yes it may be possible that you do have Fibro!" which this time I was in a much better Doctors surgery.

    May 2016: I took in a piece of paper in with all of my symptoms on it and my GP said it could be Fibro!

    June 2016: Now they are testing me for Fibro and Arthritis!

    Hope you find my story helpful!
    Kirstie-Sweetie Louise Summers
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    Margaret Aranda, MD, PhD
    12/06/2016 #4 Margaret Aranda, MD, PhD
    #3 Up on your Profile, there should be a button that says 'honey.' When you contribute a short story, that makes it!
    Margaret Aranda, MD, PhD
    12/06/2016 #2 Margaret Aranda, MD, PhD
    This would be a good post to make and submit it as a 'production' so you get credit for 'making honey!' This is a perfect length for that, so let's remember, @Kirstie-Sweete Louise!
    Margaret Aranda, MD, PhD
    12/06/2016 #1 Margaret Aranda, MD, PhD
    ....And what a typical presentation for the average person with an Invisible Illness, except most people don't personally know a doctor that they can socialize with...hence we are closing that gap here on @beBee! Thanks to @Javier beBee View more
    ....And what a typical presentation for the average person with an Invisible Illness, except most people don't personally know a doctor that they can socialize with...hence we are closing that gap here on @beBee! Thanks to @Javier beBee, @Juan Imaz, @Jim Cody & The Team! Close
  17. Kirstie-Sweetie Louise Summers

    Anonymous

    11/06/2016
    Every day people with Fibromyalgia hope for a cure! Many researchers are trying to find a cure, to cure all the pain from Fibro! Let us all hope for a cure together.
    @Margaret Aranda, MD, PhD
    Kirstie-Sweetie Louise Summers
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    Margaret Aranda, MD, PhD
    12/06/2016 #4 Margaret Aranda, MD, PhD
    @Kirstie-Sweete Louise, @Javier beBee kindly gave the link to the publishing platform here below! Super nice bee! www.bebee.com/producer
    Margaret Aranda, MD, PhD
    12/06/2016 #3 Margaret Aranda, MD, PhD
    #2 We can certainly do that, too! Muchas gracias y cada día estamos aprendiendo más!
    Javier beBee
    12/06/2016 #2 Javier beBee
    Did you try the publishing platform ? This a great place to post long post ! :) www.bebee.com/producer
    Margaret Aranda, MD, PhD
    12/06/2016 #1 Margaret Aranda, MD, PhD
    This is a worthwhile disease that remains 'invisible' for too, too long...and its first complaint from the patient is, "PAIN!!!" We do need to find a cure. This is a Quality of Life issue, and young women and men are suffering with a multitude of misunderstood or completely overlooked complaints. It is a shame. @Kirstie-Sweete Louise and I are here to increase awareness, keep updates on research results, and on patient research that You could be in, if it is located nearby! Just hold on and Stay Strong Together!
  18. Margaret Aranda, MD, PhD
    Patients, be proud of your stories. They have been your 'war.' It's okay. You're a WARRIOR.

    Patients that "hate doctors" have usually been to many doctors over many months or years, without a diagnosis. The only thing that the patient may have been offered is a referral "..to a psychiatrist..." because "It's all in your head. All your tests are normal."

    "Well, since when do doctors look at "tests" instead of the Patient History and the Physical Exam to get a working diagnosis? Tests and studies are only supposed to CONFIRM a diagnosis, doctor. Remember that from medical school?" ~ Dr Margaret Aranda

    "Doctor, where is your stethoscope? Did you listen to the patient's heart? Did you get your eyes off the computer and look into both of your patient's eyes? If you didn't examine your patient, you are not allowed to bill insurance. Examine your patients. Every single patient deserves a Physical Exam. No exceptions, even in comatose, ventilated patients whose eyes can still be examined for response to light." ~ Margaret Aranda, MD, Ph.D.
    Margaret Aranda, MD, PhD
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    Margaret Aranda, MD, PhD
    12/07/2016 #30 Margaret Aranda, MD, PhD
    #28 @Dale Masters, yup. I was ashamed when I lost my bladder on the plane seat, soaking my pants and taking them off in the restroom, switching to a long thin sweater tied around my waist to look like a skirt. OH..that was embarrassment and Shame, indeed! OH! Then the other time? My bladder just 'let go' in the elevator as I "put on a face" (@Pamela L. Williams) and pretended everything was fine. Until I got off the elevator and walked 'squish, squish' to the hotel door. Yes, DIAPERS. Gotta make it dam funny sometimes, and laugh at yourself. These things make for great stories, much later on...and you just know it at the time that you're 'in it' (roll of the eyes, smiling). "Just gotta love the mountains we climb, woman!" ~ Dr Margaret Aranda Original Quote lol
    Margaret Aranda, MD, PhD
    12/07/2016 #29 Margaret Aranda, MD, PhD
    #27 Ha! That woman was me. True. 77/44 mm Hg and discharged from the ER. Went straight home and drank 1 liter of water with sunflower seeds (for sodium, Na+), and a banana (for potassium, K+). Yup. Perhaps that was the #85th time the doctors tried to kill me. Ha. You know I have God on my side, and it just wasn't my Time. Still have more work to do for the Kingdom. Amen.
    Dale Masters
    20/06/2016 #28 Dale Masters
    #21 Don't worry...I did the same, only it was brown. That's why I wear diapers (NO! They're NOT briefs! Call it what it is...there's NO SHAME in being sick!)
    Dale Masters
    20/06/2016 #27 Dale Masters
    #23 @Margaret Aranda, MD, PhD 77/44...and they RELEASE her? REALLY?? Where did they study...the Alfred E. Neumann School of Medicine??? I could be in a COMA, and STILL see the woman needs help!
    Margaret Aranda, MD, PhD
    17/06/2016 #25 Margaret Aranda, MD, PhD
    #24 Yes, two things here. One thing is that if a patient is in a Health Managed Organiz (HMO) where it's computerized records that any doctor in the entire system can 'see,' patient privacy is still not secure. So going 'outside' of the system to seek a 2nd Opinion can be very worthwhile (and mentally validating). In the world of RareDiseases, the doctors classically tell us it's "all in your head" because they've never heard of it before. Happens to millions. On the Drug Enforcement Agency (DEA) for narcotics & MD criminal Rx-writing for $$, yes! Get those doctors in jail not only for harmed people and the crime itself, but add more time on for breaking the Hippocratic Oath. We need to restore "Honor" in society. Thanks, @Brian McKenzie. I like your style. Just take the bull by the horns. Love it.
    Brian McKenzie
    17/06/2016 #24 Brian McKenzie
    Once they call you crazy, there is no cure, just monetization for the flavor of the month candied solution they got paid to push. I took special relish when busting a Doctor for trafficking controlled substances; and it happens all too often.
    Margaret Aranda, MD, PhD
    17/06/2016 #23 Margaret Aranda, MD, PhD
    @Lisa Gallagher: How awesome that you were on top of things, knowledgeable, supported by a loving husband, and somehow able to get the doctors to be compassionate! Quite the great story that I never hear any more! How wonderful it is that you and your husband have been through all this together, gaining self-knowledge and education along the way. I'm certain that you 'made' his diagnoses, on more than one occasion. And to have doctors call you at home and give you their cell phone numbers? Why, that's unheard of these days! I wish I knew the 'secret formula' you have, as I would share it far and wide. Alas, what a great and fantastic road...rather a roller coaster at times, and for years...and I know how much Sarcoidosis can affect quality of life. Your husband gets the A+ of the day for being so strong and holding down the Fort, too during all this time! WoW~ is he related to Superman? You Go, Girl! You know what you are doing. I would really like to see you Produce some honey on this one, keeping in mind the millions of women without husbands that go to the ER with a blood pressure of 77/44 mmHg (me) and just get discharged with no treatment! They think we are faking it! Oh, please write a piece that gives the masses hope in 'real' doctors again...people need to hear this! You can change your name/ID and make it 3rd person...but I'm telling you that your story would mean The World to millions of young women out there. Please, please consider & cc me on the article so I don't miss it! Keep on Keepin' On! You've Got it! Joy & Happiness to you both!
    Lisa Gallagher
    16/06/2016 #22 Lisa Gallagher
    @Margaret Aranda, MD, PhD, Couldn't agree more with you. My husband has had some health issues and one in particular shouldn't have progressed as it did had the first 3 Dr's listened to him. He had a history of Asthma and just kept saying his Asthma was progressing. So, for 2 years other than giving him steroids along with his regular medicines they did nothing. I had to push and ask for a CT - finally after 2 years they did one. They found granulomas, ground glass opacity, and some minor fibrosis after the CT was done. That was it, we were off to UPMC in Pittsburgh after I researched the heck out of Dr's. He ended up with the Director of Pulmonology at the Simmons Lung Center in Pittsburgh. Let me back up.. he was also diagnosed with Sarcoidosis in 87 and prior to going to UPMC they kept saying it was his Sarcoid causing the symptoms. He had a VATS proceedure in Erie and they said the biopsy came back as Sarcoid. No- we took our slides to UPMC and they even took the slides to a conference (The Dr.. and Pathologist), it was determined by 11 plus Dr's he had hypersensitivity pneumonitis caused by a drug he was on. After the drug was removed he improved somewhat. He has scarring so they are now treating him with Cellcept. They listened and he is now doing better. Amazingly he has a will of steel and continued to run his business fulltime through out this ordeal. I could never share this story on Linkedin because he would not want others to know what he's been through. Thank God he had Dr's who really listened and gave us their cell numbers, personal email addresses and even called the home to check on him.
    Margaret Aranda, MD, PhD
    16/06/2016 #21 Margaret Aranda, MD, PhD
    I'll volunteer a funny (only in retrospect, mind you) buzz on 'Being ashamed of my Story." Once, I lost my entire bladder in an elevator (it's part of the traumatic brain injury & dysautonomia)...and how would you like to just "STAND THERE" waiting for each person to get off the elevator while your shoes fill with pee? I just kept my chin up and smiled at that elevator door...waiting for it to LET ME OUT! @Kirstie-Sweetie Louise, @Dale Masters, @Randy Smith, @Lisa Gallagher, @Alison Huntley, @James McElearney (wishing I had a drink!), @Bill Stankiewicz, (and someone who would distract attention away & start hyperventilating from claustrophobia on the elevator! Was that a dream? Or is it a true story? Who the heck is inspired? AAHHHH!
    Ali Anani
    16/06/2016 #20 Ali Anani
    #19 Thank you my friend @Margaret Aranda, MD, PhD
    Margaret Aranda, MD, PhD
    16/06/2016 #19 Margaret Aranda, MD, PhD
    #18 Oh sweet @Ali Anani, you are completely 100% "excused," of course! It wasn't your confusion ~ no worries and have a fantastic, glorious day!
    Ali Anani
    16/06/2016 #18 Ali Anani
    #17 At least I am excused "a little" for my confusion. Thank you @Margaret Aranda, MD, PhD
    Margaret Aranda, MD, PhD
    16/06/2016 #17 Margaret Aranda, MD, PhD
    #13 All is well, @Ali Anani. I am the author of this piece, and you were correct. @Kirstie-Sweetie Louise submitted her article to the Invisible Illness: Fibromyalgia goup(s), and there was a little confusion. No worries! We're all working for a good cause and appreciate your confirmation of its worthiness! Thank you!
    Margaret Aranda, MD, PhD
    16/06/2016 #15 Margaret Aranda, MD, PhD
    #11 Thank you so much, @Ali Anani. We were just able to get @Kirstie-Sweetie Louise her diagnosis, and the mental anguish of many young adults is really alarming. So I'm happy to be on this 'ride of life' with her, as we both have Invisible Illnesses (I have had 2 Traumatic Brain Injuries, and also have Dysautonomia & a few more things that no one has ever heard of....hence my supercharged efforts to help this patient population! So much appreciate your fondest regards to the cause!
    Ali Anani
    15/06/2016 #14 Ali Anani
    An effort that is worthy of your support and contributing to.
    Ali Anani
    15/06/2016 #13 Ali Anani
    #12 @Kirstie-Sweetie Louise- I am deeply sorry for mistakenly thinking that @Margaret Aranda, MD, PhD is the author. I love the idea of this buzz and is worthy contributing to.
    Ali Anani
    15/06/2016 #11 Ali Anani
    This is a noble effort @Margaret Aranda, MD, PhD
    Margaret Aranda, MD, PhD
    15/06/2016 #9 Margaret Aranda, MD, PhD
    #4 And I love and cherish you each & every day!!!
    Margaret Aranda, MD, PhD
    15/06/2016 #8 Margaret Aranda, MD, PhD
    #6 @Dale Masters; Thank you so much for all your devotion and support to helping others, even when you are not feeling well. I love love love your new Profile Pic, and it gives me 'hope' every time that I see it! Sending you hugs!
    Margaret Aranda, MD, PhD
    13/06/2016 #7 Margaret Aranda, MD, PhD
    #6 Awesome way to look at it!
  19. Margaret Aranda, MD, PhD
    Not everyone in the world uses the same "Pain" classifications to diagnose Fibromyalgia, nor does every patient "Fit" into an accepted "Category." In fact, most patients don't "fit" into any category at all, that is recognized by a formal "list" accepted by allopathic medicine.

    "We need the medical books to perk up and get in line with what the patients are saying. The Patient History and Chief Complaints are still the top leaders in getting a clinical diagnosis." ~ Margaret Aranda, MD, PhD.

    "The fact remains: These Patients Need Pain Relief, and they need it for Quality of Life. Period." ~ Dr Margaret Aranda
    Margaret Aranda, MD, PhD
    Relevant

    Comments

    Margaret Aranda, MD, PhD
    12/06/2016 #6 Margaret Aranda, MD, PhD
    #5 You do bring up a great point for all patients, no matter the ailment: if your doctor can't "figure it out," ask for a Referral to a Specialist. Period.
    Margaret Aranda, MD, PhD
    12/06/2016 #4 Margaret Aranda, MD, PhD
    #3 Oh, it's another layer! There's no such thing as "arthritis." It is either osteoarthritis or autoimmune arthritis. So, seeing a Rheumatologist who knows how to make the proper diagnosis is a key element for getting a diagnosis.
    Margaret Aranda, MD, PhD
    12/06/2016 #2 Margaret Aranda, MD, PhD
    This is just the beginning of the vagueness and confusion surrounding Fibromyalgia....and lots of people recommend getting checked for Lyme Disease and arthritis at the same time, too! @Kirstie-Sweete Louise, @Randy Smith
  20. Margaret Aranda, MD, PhD
    "Of all the symptoms related to Fibromyalgia, "Pain" seems to be the biggest Quality of Life issue, the least understood and classified worldwide, and one of the most compelling conquests ahead of 2016." ~ Margaret Aranda, MD, PhD Margaret Aranda, MD, PhD
    Relevant

    Comments

    Margaret Aranda, MD, PhD
    12/06/2016 #3 Margaret Aranda, MD, PhD
    #2 You are very blessed to have a diagnosis instead of suffering for months or years longer, without knowing what you have. At least now, you can "put it in a box." That allows you to adjust and understand.
    Margaret Aranda, MD, PhD
    11/06/2016 #1 Margaret Aranda, MD, PhD
    Do I have Fibromyalgia?
    Let's take a look at some common symptoms.
    To me, the most important and challenging, ubiquitous symptom is "Pain."