- 29/09/2016I think living with a Invisible Illness is bad, because you have to try and explain it to everyone that all illnesses are not visible! If you love that person you should be there for them no matter what happens! Don't say "You don't look sick!" to them! It hurts people like me when you say that! Yes I am fighting a recent diagnoises of Fibromyalgia!
It annoys me when people say to you "You should get out more!" or "You should go to bed early!" it's not that simple at all!
I live with Fibro, Seizure's (uncontrolled), asthma, short term memory loss, Dairy & Lactose Intoloance, it isn't visible what i live with! Yes some people have seen me have a drop seizure and yes them too are not controlled! The Drs think I may even Have IBS!
Pray for each other! Do not judge someone just by looking at them please! Thank you!
- 29/06/2016I think having Head pain is one of the most painful symptoms of Fibromyalgia, as it really hurts! It makes one very sleepy though!
@Margaret Aranda, MD, PhD @Dale Masters
- 27/06/2016Today in National PTSD Awareness Day. Traumatic stress isn't just the result of a singular event, or several of them. It is also the result of chronic unreleased stress. PTSD effects all of life, and it is curable. I know. Mine is the face of PTSD
Comments28/06/2016 #3 Margaret Aranda, MD, PhDI think that there is a huge demand for this Hive to overlap with my hive, "Veterans: Mental Health" but I ran out of Buzzes to share. Can @Leckey Harrison, @Sara Jacobovici, @Lisa 🐝 Gallagher, @Brian McKenzie, @Randy Keho, @Mamen 🐝 Delgado, and would like to run that by my loves: @Franci🐝Eugenia Hoffman and @Ali Anani!28/06/2016 #2 Margaret Aranda, MD, PhD@Leckey Harrison: ABSOLUTELY the "take-home" message of the month! Just as an anesthesiologist and trauma surgeon work together with the Operating Room nurses and surgical technicians, we too have to work on one human at a time, to "put them back together, healing their wounds." And we are DOING it! We don't just talk about it. We DO.28/06/2016 #1 Margaret Aranda, MD, PhDPerfect scenario. Just perfect. And just as I dedicate a Buzz a week for our Veterans, the chronically ill, and the oppressed, I shall always be here, too. We don't need a National Day or a National Month to devote to honoring any of these issues. They are infinite and deserve great justice. Thank you for joining me, @Leckey Harrison! I can't thank your leadership enough!
- 28/06/2016Please show your support to people with Fibromyalgia!
Every day Fibro claims another persons life, as they can't do things on a daily basis anymore!
There always in constant pain, with there: Ribs, Head, Shoulders etc!
The only terrible thing about this illness, is that it is an Invisible Illness. So it's easy to mis-diagnosed for years!
I know this because I happen to now live with Fibromyalgia after many painful and stressful GP trips!
So Me and @Margaret Aranda, MD, PhD are here to spead as much awareness as we can about Invisible Illnesses!
- 17/06/2016We Are Strong! We Are Fighters! We Are FIBROMYALGIA WARRIORS!
@Margaret Aranda, MD, PhD
- 16/06/2016Having Fibromyalgia & Chronic Pain is learnng to takke the pain that is so Unbareable to all Fibro suffers! Every day we all hope for a Chronic Pain Cure!
One day we can do things (little things) like tiding, then after we can't do anything else the next day! There's Good & Bad days!
With Fibro our bad days we need a friend to support us bescause we might look OK, but deep down we are always in pain Constantly. Sometimes our pain is Bareable sometimes it isn't.
If you have a Friend who thinks she/he has Fibro please Support them as it is so difficult for us to get a diagnoses!
@Margaret Aranda, MD, PhD
- 14/06/2016Shop Tate Publishing for Dr Margaret Aranda's books (5). A Stanford Medical Alumni in anesthesiology and critical care, her first book is her Memoir. It was written after a tragic car accident left her with a Traumatic Brain Injury, unable to walk or talk. Genres: Memoir, Christian Living, Children's Books, and Women's Health. One note: It is interesting to see how her brain heals over time. All books made Nancy Mills' Top 12 Spirited Woman Book Pick Lists.Other Workswww.drmargaretaranda.tateauthor.com
Comments16/06/2016 #26 Margaret Aranda, MD, PhD#25 Oh, @Mamen 🐝 Delgado, hey...if it was you, I bet you'd still be complaining about the hospital food, too! lol I could be a stand-up comedian with all the stories I could tell. I somehow always leave people wondering if my stories are true....or false? Believe me, no one can make this stuff up! Let's ditch everyone and just go to the beach and fly a kite, yes? :-)!16/06/2016 #24 Margaret Aranda, MD, PhD#23 lol! Oh! Because @Nick Mlatchkov, I just decided that I'm never going to grow up! Wanna go chase the wind? Let's go! Tagging @Bill Stankiewicz, 🐝 Brand Ambassador, @Dale Masters, @Mamen 🐝 Delgado, @Kirstie-Sweetie Louise, @Michele Williams & @John White, MBA, too! 1..2..3....Go!15/06/2016 #22 Margaret Aranda, MD, PhD#20 @Nick Mlatchkov! Great question, sorry I just mentioned it in passing. Many churches have "Holy Oil" that they place on the forehead of a dying person. Since they thought I was actually in the process of dying on the ER bed, some would properly call it not the "Last Rites," but the "Sacrament of Extreme Unction." Usually a rite performed by the Catholic church, it is described here in brief: https://www.olrl.org/Lessons/Lesson27.shtml15/06/2016 #21 Margaret Aranda, MD, PhDCOUNTDOWN: 40 MIN:
Show Title: "Grassroots Talks Radio"
Hosted By Dr. Allen L. Brown and Co-Host Dr. Margaret Aranda
Every Wedn at 11:30 am - noon (PST)
Topic: WHAT IF GOD TOOK A DAY OFF?
Callers! Call in (657) 383-0162
We often have high expectations from God. Does He expect anything in return?
http://www.blogtalkradio.com/grassrootstalks/2016/06/15/if-god-took-a-day-off14/06/2016 #19 Margaret Aranda, MD, PhD#18 Oh No! Don't make me shine my halo! lol Seriously, I love your opinions and writings and I want to be just like you when I grow up. Oh. But wait. I decided at age 31 that I'm never going to grow up....so ignoring my birthday in 9 days, I cherish all your comments. And I know you don't just 'hand out' compliments, so thank you for the early present :-)!14/06/2016 #12 Margaret Aranda, MD, PhD#11 Why thank you, @Lisa 🐝 Gallagher but it wasn't my choice. The lady that hit me pressed the gas instead of the brakes when her fast food fell off the passenger seat....changing my life in an instant. I visited the door of Heaven when I almost died in the hospital, Last Rights of oil being pressed onto my forehead when I woke up.....and it is nice to know that my life right now makes a difference. I don't fear death, but I value each minute like never before.....
- 15/06/2016Tune into our next radio broadcast
Show Title: "Grassroots Talks Radio"
Hosted By Dr. Allen L. Brown and co-host Dr. A
Starts at 11:30 am to noon PST
Topic: What is God took a day off?
Call in (657) 383-0162
We often have high expatiation from God. Does he expect anything in return.If God Took A Day Offwww.blogtalkradio.com Ask not what god can do for you but what you can do for God. We ask a lot from God but do we ever ask God what we can do for...
Comments15/06/2016 #2 AnonymousTune into my next radio broadcast tomorrow Start 11:30am till noon PST
Hosted by Dr. Allen L. Brown with Co-host Dr. A
Join us in a discussion as we ask a very simple question. We ask a lot from God . What if God Took A Day Off?
Call in to listen by dialing (657) 383-0162 or just click the link below. Fasten your seat belts. We talk about issues and topics others won't touch.
- 12/06/2016Welcome, @Kirstie-Sweete Louise to increase awareness, research, and a cure for patients with fibromyalgia! Together, we are strong and we can Bzzz around and make lots of honey!
Comments13/06/2016 #5 Margaret Aranda, MD, PhD#4 It would be helpful to this Hive Community if we could learn more...have you spoken to others in Fibro Groups about the drug/Rx? What is anticipated from the groups? And of course, I do hope that it helps...we all do. Lots of times for Pain Management, Pain Doctors prescribe 'depression medications' at low doses, because they work for lots of Pain patients. So the important thing to note here is: Just because your doctor prescribes you a "Depression Rx" that does NOT mean anyone should feel ashamed, or think "I'm not depressed!" The doctor isn't using the drug for depression. She is using it for another reason. I want to make sure that point is really well clarified here, so that more patients actually fill the prescriptions and then actually take the medications.
- 12/06/2016Having people who believe we have an Invisible Illness like Fibromyalgia is a great thing to have! The people who don't believe you are the worst people to be around and we have to rather try and do our best to explain it to them, then after you've explained it and they are still in denial you have to walk away! People need to be aware much much more of this Invisible Illness so that they can be there for us on our bad days! Please Help Us Raise Awareness Of Invisible Illness & Chronic Pain! Help People Like Me Find A Cure To Treat Fibromyalgia! Thank You!
@Margaret Aranda, MD, PhD
- 12/06/2016Here is a popular video on Fibromyalgia, so that family, friends, and Caregivers can understand a little. But don't be surprised, Patients with FIbro, if your 'circle of friends who care' gets smaller and smaller as the years go by. Just remember that you're not alone! We're always here, and so are many others! Never Give Up! @Kirstie-Sweete Louise, @Randy SmithFibromyalgia Awareness May 12 is National Fibromyalgia Awareness Day Make Fibro Visible!! National Fibromyalgia Association: http://www.fmaware.org But You Don't Look Sick / Spoon...
- 11/06/2016My Story for getting a diagnoses of Fibromyalgia.
My story starts when 4 years ago after I had really bad pain that I couldn't explain how I could be in this most pain. I took plenty of trips to the Doctors and they were saying "well you look fine, I'll give you some strong painkillers" now at this time I didn't know I was becoming Sensitive to all medications. They kept on giving me painkillers and I came to the point where i was getting to tired to do anything. The painkillers were making me so drowsy.
Moving on, I changed my Doctors surgery so many times that I didn't like to go to the Doctors anymore.
2014 I met @Margaret Aranda, MD, PhD on facebook and she helped me through everything.
2015 Margaret said "I think you may have Fibro" I was confused because I had never herd of Fibro before. So she put me in touch with some one she knew could help me! I talked to her and she said the same thing.
Moving on to 2016: Now I still wasn't getting anywhere with my pain, so I saw my Neurologist and discussed Fibromyalgia with him and he said "yes it may be possible that you do have Fibro!" which this time I was in a much better Doctors surgery.
May 2016: I took in a piece of paper in with all of my symptoms on it and my GP said it could be Fibro!
June 2016: Now they are testing me for Fibro and Arthritis!
Hope you find my story helpful!
Comments12/06/2016 #1 Margaret Aranda, MD, PhD....And what a typical presentation for the average person with an Invisible Illness, except most people don't personally know a doctor that they can socialize with...hence we are closing that gap here on @beBee! Thanks to @Javier 🐝 beBee View more....And what a typical presentation for the average person with an Invisible Illness, except most people don't personally know a doctor that they can socialize with...hence we are closing that gap here on @beBee! Thanks to @Javier 🐝 beBee, @Juan Imaz, @Jim 🐝 Cody & The Team! Close
- 11/06/2016Every day people with Fibromyalgia hope for a cure! Many researchers are trying to find a cure, to cure all the pain from Fibro! Let us all hope for a cure together.
@Margaret Aranda, MD, PhD
Comments12/06/2016 #1 Margaret Aranda, MD, PhDThis is a worthwhile disease that remains 'invisible' for too, too long...and its first complaint from the patient is, "PAIN!!!" We do need to find a cure. This is a Quality of Life issue, and young women and men are suffering with a multitude of misunderstood or completely overlooked complaints. It is a shame. @Kirstie-Sweete Louise and I are here to increase awareness, keep updates on research results, and on patient research that You could be in, if it is located nearby! Just hold on and Stay Strong Together!
- Patients, be proud of your stories. They have been your 'war.' It's okay. You're a WARRIOR.
Patients that "hate doctors" have usually been to many doctors over many months or years, without a diagnosis. The only thing that the patient may have been offered is a referral "..to a psychiatrist..." because "It's all in your head. All your tests are normal."
"Well, since when do doctors look at "tests" instead of the Patient History and the Physical Exam to get a working diagnosis? Tests and studies are only supposed to CONFIRM a diagnosis, doctor. Remember that from medical school?" ~ Dr Margaret Aranda
"Doctor, where is your stethoscope? Did you listen to the patient's heart? Did you get your eyes off the computer and look into both of your patient's eyes? If you didn't examine your patient, you are not allowed to bill insurance. Examine your patients. Every single patient deserves a Physical Exam. No exceptions, even in comatose, ventilated patients whose eyes can still be examined for response to light." ~ Margaret Aranda, MD, Ph.D.
Comments12/07/2016 #30 Margaret Aranda, MD, PhD#28 @Dale Masters, yup. I was ashamed when I lost my bladder on the plane seat, soaking my pants and taking them off in the restroom, switching to a long thin sweater tied around my waist to look like a skirt. OH..that was embarrassment and Shame, indeed! OH! Then the other time? My bladder just 'let go' in the elevator as I "put on a face" (@Pamela 🐝 Williams) and pretended everything was fine. Until I got off the elevator and walked 'squish, squish' to the hotel door. Yes, DIAPERS. Gotta make it dam funny sometimes, and laugh at yourself. These things make for great stories, much later on...and you just know it at the time that you're 'in it' (roll of the eyes, smiling). "Just gotta love the mountains we climb, woman!" ~ Dr Margaret Aranda Original Quote lol12/07/2016 #29 Margaret Aranda, MD, PhD#27 Ha! That woman was me. True. 77/44 mm Hg and discharged from the ER. Went straight home and drank 1 liter of water with sunflower seeds (for sodium, Na+), and a banana (for potassium, K+). Yup. Perhaps that was the #85th time the doctors tried to kill me. Ha. You know I have God on my side, and it just wasn't my Time. Still have more work to do for the Kingdom. Amen.17/06/2016 #25 Margaret Aranda, MD, PhD#24 Yes, two things here. One thing is that if a patient is in a Health Managed Organiz (HMO) where it's computerized records that any doctor in the entire system can 'see,' patient privacy is still not secure. So going 'outside' of the system to seek a 2nd Opinion can be very worthwhile (and mentally validating). In the world of RareDiseases, the doctors classically tell us it's "all in your head" because they've never heard of it before. Happens to millions. On the Drug Enforcement Agency (DEA) for narcotics & MD criminal Rx-writing for $$, yes! Get those doctors in jail not only for harmed people and the crime itself, but add more time on for breaking the Hippocratic Oath. We need to restore "Honor" in society. Thanks, @Brian McKenzie. I like your style. Just take the bull by the horns. Love it.17/06/2016 #23 Margaret Aranda, MD, PhD@Lisa 🐝 Gallagher: How awesome that you were on top of things, knowledgeable, supported by a loving husband, and somehow able to get the doctors to be compassionate! Quite the great story that I never hear any more! How wonderful it is that you and your husband have been through all this together, gaining self-knowledge and education along the way. I'm certain that you 'made' his diagnoses, on more than one occasion. And to have doctors call you at home and give you their cell phone numbers? Why, that's unheard of these days! I wish I knew the 'secret formula' you have, as I would share it far and wide. Alas, what a great and fantastic road...rather a roller coaster at times, and for years...and I know how much Sarcoidosis can affect quality of life. Your husband gets the A+ of the day for being so strong and holding down the Fort, too during all this time! WoW~ is he related to Superman? You Go, Girl! You know what you are doing. I would really like to see you Produce some honey on this one, keeping in mind the millions of women without husbands that go to the ER with a blood pressure of 77/44 mmHg (me) and just get discharged with no treatment! They think we are faking it! Oh, please write a piece that gives the masses hope in 'real' doctors again...people need to hear this! You can change your name/ID and make it 3rd person...but I'm telling you that your story would mean The World to millions of young women out there. Please, please consider & cc me on the article so I don't miss it! Keep on Keepin' On! You've Got it! Joy & Happiness to you both!16/06/2016 #22 Lisa 🐝 Gallagher@Margaret Aranda, MD, PhD, Couldn't agree more with you. My husband has had some health issues and one in particular shouldn't have progressed as it did had the first 3 Dr's listened to him. He had a history of Asthma and just kept saying his Asthma was progressing. So, for 2 years other than giving him steroids along with his regular medicines they did nothing. I had to push and ask for a CT - finally after 2 years they did one. They found granulomas, ground glass opacity, and some minor fibrosis after the CT was done. That was it, we were off to UPMC in Pittsburgh after I researched the heck out of Dr's. He ended up with the Director of Pulmonology at the Simmons Lung Center in Pittsburgh. Let me back up.. he was also diagnosed with Sarcoidosis in 87 and prior to going to UPMC they kept saying it was his Sarcoid causing the symptoms. He had a VATS proceedure in Erie and they said the biopsy came back as Sarcoid. No- we took our slides to UPMC and they even took the slides to a conference (The Dr.. and Pathologist), it was determined by 11 plus Dr's he had hypersensitivity pneumonitis caused by a drug he was on. After the drug was removed he improved somewhat. He has scarring so they are now treating him with Cellcept. They listened and he is now doing better. Amazingly he has a will of steel and continued to run his business fulltime through out this ordeal. I could never share this story on Linkedin because he would not want others to know what he's been through. Thank God he had Dr's who really listened and gave us their cell numbers, personal email addresses and even called the home to check on him.16/06/2016 #21 Margaret Aranda, MD, PhDI'll volunteer a funny (only in retrospect, mind you) buzz on 'Being ashamed of my Story." Once, I lost my entire bladder in an elevator (it's part of the traumatic brain injury & dysautonomia)...and how would you like to just "STAND THERE" waiting for each person to get off the elevator while your shoes fill with pee? I just kept my chin up and smiled at that elevator door...waiting for it to LET ME OUT! @Kirstie-Sweetie Louise, @Dale Masters, @Randy Smith, @Lisa 🐝 Gallagher, @Alison Huntley, @James McElearney (wishing I had a drink!), @Bill Stankiewicz, 🐝 Brand Ambassador, (and someone who would distract attention away & start hyperventilating from claustrophobia on the elevator! Was that a dream? Or is it a true story? Who the heck is inspired? AAHHHH!16/06/2016 #17 Margaret Aranda, MD, PhD#13 All is well, @Ali Anani. I am the author of this piece, and you were correct. @Kirstie-Sweetie Louise submitted her article to the Invisible Illness: Fibromyalgia goup(s), and there was a little confusion. No worries! We're all working for a good cause and appreciate your confirmation of its worthiness! Thank you!16/06/2016 #15 Margaret Aranda, MD, PhD#11 Thank you so much, @Ali Anani. We were just able to get @Kirstie-Sweetie Louise her diagnosis, and the mental anguish of many young adults is really alarming. So I'm happy to be on this 'ride of life' with her, as we both have Invisible Illnesses (I have had 2 Traumatic Brain Injuries, and also have Dysautonomia & a few more things that no one has ever heard of....hence my supercharged efforts to help this patient population! So much appreciate your fondest regards to the cause!
- Not everyone in the world uses the same "Pain" classifications to diagnose Fibromyalgia, nor does every patient "Fit" into an accepted "Category." In fact, most patients don't "fit" into any category at all, that is recognized by a formal "list" accepted by allopathic medicine.
"We need the medical books to perk up and get in line with what the patients are saying. The Patient History and Chief Complaints are still the top leaders in getting a clinical diagnosis." ~ Margaret Aranda, MD, PhD.
"The fact remains: These Patients Need Pain Relief, and they need it for Quality of Life. Period." ~ Dr Margaret Aranda
- "Of all the symptoms related to Fibromyalgia, "Pain" seems to be the biggest Quality of Life issue, the least understood and classified worldwide, and one of the most compelling conquests ahead of 2016." ~ Margaret Aranda, MD, PhD