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Invisible Illnesses: Lyme Disease - beBee

Invisible Illnesses: Lyme Disease

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Lyme STAGE 1: Rash. STAGE 2: Flu, heart, neuro. STAGE 3 (LATE): Arthritis, Encephalopathy, Neuropathy.
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  1. ProducerMargaret Aranda, MD, PhD
    Invisible Illness: Lyme Disease
    Invisible Illness: Lyme Disease/ by Dr Margaret Aranda / Invisible Illnesses are fraught with interspersed layers of complexity. There's the diagnosis, which could take 10 years and 10 doctors, untold time and money wasted with improper diagnoses and failure to treat until...
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    Aurorasa Sima
    09/09/2016 #15 Aurorasa Sima
    I have recently heard about this here in the US for the first time. I am not sure that we have it in Germany. It seems you have a lot of insight and expertise on this mysterious disease. I know someone who´s partner has this disease and will send them your link.
    Ben Pinto
    08/09/2016 #14 Ben Pinto
    As it is one of the newer diseases we still have much research to do on this. My stepfather had many complications due to the disease and just like your article points out, there is so much in the way of confirming the disease to trying to combat it that years go by. Today he is about 95 years old, in hospice care, and with advanced dementia has the mind of a toddler at best.
    Franci🐝Eugenia Hoffman
    08/09/2016 #13 Franci🐝Eugenia Hoffman
    Superbly written @Margaret Aranda, MD, PhD and bringing awareness to Lyme disease is commendable. There are too many diseases that are misdiagnosed for one reason or another (I am not trying to place blame). Keep smiling.
    Margaret Aranda, MD, PhD
    07/09/2016 #12 Margaret Aranda, MD, PhD
    #11 You got it. I'll be posting your beautiful Rose artistry soon, as I finalize preliminary rules to hold a Poetry Contest~ ;-). It's good to add a little cheer here and there so we each smile. lovya2/143 ((Smiles!))
    WILLIAM C. BALLARD II
    06/09/2016 #11 WILLIAM C. BALLARD II
    #10 One who stands alone with GOD, has more potential to do good, Than all the doctors in the world. For what is learned, we learn from mistakes. THE PLAN OF GOD has never been a mistake, Good or bad, life or death, That puzzle peace only fits THE PUZZLE OF GODS PLAN. Now what is given, is truth, Sometimes hurts, but we learn don't we? lovya 143
    Margaret Aranda, MD, PhD
    06/09/2016 #10 Margaret Aranda, MD, PhD
    #9 I'm so sorry I can't defend doctors from the past. I only know that I have been affected by dysautonomia (which I still have to write about) and I know the Patient mindset all too well. For I was treated as a malingerer, a fake and a liar and the horrific mental battles continue with so many after getting a diagnosis. Spot On, you are! No one knows how many people were misdiagnosed or undiagnosed. The potential number boggles my brain. It's so sad. I'm just here to do what I can as one person, and God Bless Us All.
    WILLIAM C. BALLARD II
    05/09/2016 #9 WILLIAM C. BALLARD II
    The question is , how many people where "misdiagnosed" in the past? Doctors took full responsibility committing people to a mental institutions. Knowing another family member had the same sickness Thinking a mental problem was hereditary, But it was LYME DISEASE because of the ticks in the area, HELLO !
    Margaret Aranda, MD, PhD
    05/09/2016 #8 Margaret Aranda, MD, PhD
    #3 Always a pleasure! I added a section on medical miracles. Going to include a medical miracle and a National Medical Board Examination question on all my medical articles. Medical students, interns, residents and Fellows will appreciate the fine distinctions in decision-making that physicians are trained to have.
    Margaret Aranda, MD, PhD
    05/09/2016 #7 Margaret Aranda, MD, PhD
    #2 Speaking from your own experience, it's refreshing to see this topic resonate with someone entrenched in the Invisible Illness population. If a patient, family and friends gain knowledge and empowerment, that validation is medicine in and of itself. Thank you for sharing your unique perspective. I'm glad it resonates with you.
    Margaret Aranda, MD, PhD
    05/09/2016 #6 Margaret Aranda, MD, PhD
    #1 Appreciate your comment so much, as you know and appreciate how important it is to address this topic. Thanks!
    Robert Cormack
    05/09/2016 #5 Robert Cormack
    Lyme Disease has been mismanaged for many years. I'm not sure it's limited to doctors simply not believing "young female patients." We taught young people to go to the doctor with any symptom. We created a "Cry Wolf" mentality and now we're suffering the aftereffects. Too often the patient wants "a real disease," feeling jilted if the doctor says, "It may be that you're just run down." As heartless as it sounds, you know yourself, that's often the case, particularly with young people thinking they can "go and go." There are only so many Red Bulls you can drink before you crash, and that's when everyone self-diagnoses Lyme Disease, rather than admit they need a few days off.
    Jim 🐝 Cody
    05/09/2016 #4 Jim 🐝 Cody
    @Margaret Aranda, MD, PhD Great and comprehensive buzz. Yes because most doctors haven't seen Lyme disease and the symptoms vary they often misdiagnose. Thanks and be well,
    Francisco Lopez
    05/09/2016 #3 Francisco Lopez
    Great article! Hopefully you don't mind I share it.
    Cyndi wilkins
    04/09/2016 #2 Cyndi wilkins
    "Persistent complaints deserve immediate attention by seeking multiple doctor evaluations, perseverance at getting a diagnosis, and protecting our mental health. Many times, that in itself will trigger a broader range of thinking so that ultimately, the diagnosis is made. And no, going to see the psychiatrist to make sure it's not "All in Your Head" is not part of this plan." Thank you @Margaret Aranda, MD, PhD for this extremely important article...Many who suffer chronic illness spend a lifetime travelling this rocky terrain in search of someone to help them make sense of what they are experiencing. In my personal experience with autoimmune dysfunction, it has taken years for the clinical pieces to finally fall into place. At least there is a sense of peace when you know what you are dealing with. Fortunately for me, I have also spent those years seeking holistic treatments for the many symptoms that have traditionally been "medicated into submission," giving disease the perfect opportunity to slip in the back door and catch you unaware. Don't just rest in a holding pattern of "watchful waiting. Just because something doesn't present on a lab test does not mean there isn't trouble brewing. Where there is smoke there is fire...Those persistent symptoms are the smoke signals your body sends out to capture your attention. For me, focusing on the health of the gut microbiome has been extraordinarily helpful in quelling the inflammatory process at the heart of disease as well as regular "check-ins" with my emotional state...Stress being the biggest exacerbating element of disease. Seek any and all treatment that resonates with your entire being...not just your physical being. Keeping your head in the game is a crucial component to successfully advocating your own care If you are not being heard, find another doctor or therapist. Thanks again for this wonderfully presented article;-)
    John Valledor
    04/09/2016 #1 John Valledor
    Great article! As a New Englander, the deer tick is nothing to dismiss. While the rest of America endures micro-climate changes as a result of the El Nino weather phenomenon, we New Englanders have endured related impacts to our climate--extreme drought conditions. Especially in southern New Hampshire. Only silver lining is that the drought conditions have devastated the deer tick population and accordingly, minimized exposure to Lyme disease. Funny how two unrelated phenomena can have both negative and positive outcomes.
  2. ProducerMargaret Aranda, MD, PhD
    Cherishing the Moments
    Cherishing the Moments/ by Dr Margaret Aranda /                                 The Partial Solar Eclipse of the Moon.  Suits the cherishing of the moments.There is just no way to sayHow I feel this moment strayBungled bewildered tropical tanSeagulls ribbed feet tossing...
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    Comments

    Dale Masters
    28/09/2016 #15 Dale Masters
    #2 It'll be an eyeblink for you until you see me, no matter how long it is here for me. It's outside of time and space. See you in the Kingdom, @Mandi Loren. Love you. Always.
    Margaret Aranda, MD, PhD
    28/09/2016 #13 Margaret Aranda, MD, PhD
    #8 Just overwhelmed and oh so grateful. Thank you. Lovin' all the love.
    Margaret Aranda, MD, PhD
    28/09/2016 #12 Margaret Aranda, MD, PhD
    #7 Beautiful perfect sentiments. So grateful.
    Dale Masters
    27/09/2016 #11 Dale Masters
    @Mandi Loren I shared this poem so that all may see it...and know the beautiful person you are.
    See you at Home.
    Dale Masters
    27/09/2016 #10 Dale Masters
    Mandi, I love you. See you in Heaven.
    Dr. @Margaret Aranda, MD, PhD, I am ALWAYS here for you.
    Dale Masters
    27/09/2016 #9 Dale Masters
    Mandi, I love you. See you in Heaven.
    Dr. @Margaret Aranda, MD, PhD, I'm ALWAYS here if you need me.
    Dale Masters
    27/09/2016 #8 Dale Masters
    I'll miss you, Mandi. I love you. See you in Heaven.
    Dr. Margaret, if you see this, know that I am ALWAYS here for you. I love you.
    Franci🐝Eugenia Hoffman
    27/09/2016 #7 Franci🐝Eugenia Hoffman
    What a lovely gesture that you wrote this beautiful poem for your friend Mandi Loren. Hugs and blessings to Mandi and you, @Margaret Aranda, MD, PhD.
    Margaret Aranda, MD, PhD
    04/09/2016 #6 Margaret Aranda, MD, PhD
    #4 #5 Amen. Thank you, @Randy Smith. Asking for continued prayer to keep @Mandi Loren out of pain. Lord, bring her Your happiness each moment we cherish. Amen.
    Randy Smith
    04/09/2016 #5 Randy Smith
    #2 You are such a blessing to me, Mandi. By God's grace, you are a strong, brave lady and have fought bravely. It's almost time to go to your real home, your eternal home. It will be grand, far beyond what we can think or imagine. You will have no more disease, no more illness, no more sickness, no more pain, no more seizures, no more sin, and no more tears. I thank God for giving us the time together that he has. I love you, Princess 👸❤.
    Randy Smith
    04/09/2016 #4 Randy Smith
    #3 Very sentimental, touching, personal poem. It brought tears to my eyes because I know you and Mandi well, and I love each of you. I'm preparing for that day, too, and I likely won't be myself for some time as I work through it, and God brings healing to my heart. Thank you for writing this poem and sharing it. God bless you, Margaret, my LS.
    Margaret Aranda, MD, PhD
    03/09/2016 #3 Margaret Aranda, MD, PhD
    #2 Honey, my tears are your tears as I stumble to find stones instead of pebbles to lift you up to higher ground. I can't do it. I'm only human - but we both have all our faith in a tremendous, glorious Christ who was resurrected so that we may have eternal life not without Him (for that alone would be the hell of separation), but together as His Bride, the body of Christ. He has your name written in the palm of His hands. He counts the hairs on your head. He waits for you, I know only because I went there, and by God's grace, He let me feel it. Your immeasurable peace, your mightiest love, is waiting - your life is complete, and I'm picking up your baton to fight for Lyme stem cell research on fetuses, in Australia. MANDIPANDI YOUR BODY dies YOUR LOVE lives in the lives your life has saved.
    Mandi Loren
    03/09/2016 #2 Mandi Loren
    @Margaret Aranda, MD, PhD tears are falling from my eyes they flow like the love u gibe me ty so much for this poem re me i will keep reading this till i die i love u mummy forever im dorry but it wont be forever we will see each other in Gods glorious eternal life xxxxxxx i hug u with tears of love n thankfulness i couldnt have got thru alot without just knowing u care when i had no one xxx
    mohammed khalaf
    03/09/2016 #1 mohammed khalaf
    all the words in poem is very expression and as it said "no feeling at pain of the injury who find of his the pain "
  3. Margaret Aranda, MD, PhD
    You can't believe this Warrior's Story....if you blink twice, you may miss the Journey! So step inside and let's help her be blessed, as she has surely been put to the test....and be in store for her great, big, beautiful ROOAARRR!
    Margaret Aranda, MD, PhD
    Mandi Loren - beBee
    www.bebee.com Public profile of Mandi Loren on beBee. beBee is the only social affinity network specialized by sector. Join and get...
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  4. Neal Rauhauser

    Anonymous

    04/07/2016
    18 Things Mentally Strong People Do Neal Rauhauser
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    Comments

    Ella de Jong
    04/07/2016 #1 Ella de Jong
    I know it and love it. Great to see it again. Thanks for sharing @Neal Rauhauser!
  5. Margaret Aranda, MD, PhD
    While the tick bite may corkscrew in its potentially deadly bite in the skin, a rash may go completely unnoticed by the patient at all. The absence of a rash does not rule out Lyme Disease. And the diagnosis of Fibromyalgia may also be accompanied by a diagnosis of Lyme Disease, so many doctors routinely screen for Lyme Disease when a diagnosis of Fibromyalgia is made. This is because Fibromyalgia is a "diagnosis of exclusion" that uses a list of criteria, and that list varies worldwide. So back to Lyme Disease, best to catch it in the Early Stage 1. Chronic Lyme, or Stage 2, has symptoms listed here. By the time Stage 3 is diagnosed, the patient is usually terminal with such symptoms as frequent seizures and encephalopathy. Margaret Aranda, MD, PhD
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    Margaret Aranda, MD, PhD
    20/06/2016 #4 Margaret Aranda, MD, PhD
    #2 God Bless You, as you have much to live for, indeed. We're losing a patient (that is a daughter to me) right now. The whole Lyme Community feels it, each time. Getting into a Lymie Group, Warrior or not will add much for both sides. I highly recommend it for all patients with Lyme, as does the Stanford Med-X Program. Empowering patients to share on the internet. It's all OK.