logoSign upLog in
Invisible Illnesses: Dysautonomia - beBee

Invisible Illnesses: Dysautonomia

~ 100 buzzes
Dysautonomia = We stand up, and then? Ha! We faint!


Dysautonomia = "Dysfunction" of the "Autonomic Nervous System," or the ANS.

The ANS does everything in your body that you don't have to think about:

1. Gets blood to your brain when you stand up;
2. Digests your food;
3. Controls your heart rate and blood pressure;
4. Controls your urinary bladder and bowels, too;
5. And much more. Much more, still to be discovered.

So, that is the Problem. What is the Solution?

Because we don't just talk about the Problem here. We talk about Solutions. Without Solutions, no one can move Forward in life. That holds true for every single level of every detail of your entire life.

To enter this new world, where millions of people just like me live sideways (and JUST FINE!) instead of standing up, listen and watch the Introduction video, please. You will learn. Guaranteed. Gracias.
Buzzes
  1. Leckey Harrison

    Leckey Harrison

    27/06/2016
    Today in National PTSD Awareness Day. Traumatic stress isn't just the result of a singular event, or several of them. It is also the result of chronic unreleased stress. PTSD effects all of life, and it is curable. I know. Mine is the face of PTSD Leckey Harrison
    Relevant

    Comments

    Leckey Harrison
    30/06/2016 #5 Leckey Harrison
    #4 You are welcome!
    Sara Jacobovici
    29/06/2016 #4 Sara Jacobovici
    Thank you @Leckey Harrison for not only having the courage to face PTSD and its effects but for enabling and inspiring others to do the same.
    Margaret Aranda, MD, PhD
    28/06/2016 #3 Margaret Aranda, MD, PhD
    I think that there is a huge demand for this Hive to overlap with my hive, "Veterans: Mental Health" but I ran out of Buzzes to share. Can @Leckey Harrison, @Sara Jacobovici, @Lisa Gallagher, @Brian McKenzie, @Randy Keho, @Mamen Delgado, and would like to run that by my loves: @Franci Eugenia Hoffman and @Ali Anani!
    Margaret Aranda, MD, PhD
    28/06/2016 #2 Margaret Aranda, MD, PhD
    @Leckey Harrison: ABSOLUTELY the "take-home" message of the month! Just as an anesthesiologist and trauma surgeon work together with the Operating Room nurses and surgical technicians, we too have to work on one human at a time, to "put them back together, healing their wounds." And we are DOING it! We don't just talk about it. We DO.
    Margaret Aranda, MD, PhD
    28/06/2016 #1 Margaret Aranda, MD, PhD
    Perfect scenario. Just perfect. And just as I dedicate a Buzz a week for our Veterans, the chronically ill, and the oppressed, I shall always be here, too. We don't need a National Day or a National Month to devote to honoring any of these issues. They are infinite and deserve great justice. Thank you for joining me, @Leckey Harrison! I can't thank your leadership enough!
  2. ProducerRebel Brown

    Rebel Brown

    16/06/2016
    Why We're Failing Young Women Leaders
    Why We're Failing Young Women Leaders Even the research says we're failing young women leaders. For example: Less than 15% of young women leaders see the executive women in their organizations as good role models. 55 % said they aren’t satisfied with the leadership development...
    Relevant

    Comments

    Rebel Brown
    26/06/2016 #44 Rebel Brown
    #43 Why thank you @Paul Walters Im honored by the kind words:)
    Paul Walters
    26/06/2016 #43 Paul Walters
    Thanks, great piece!!!
    Rebel Brown
    26/06/2016 #42 Rebel Brown
    Thanks for sharing @Milos Djukic !!!!!
    Sarah Elkins
    26/06/2016 #41 Sarah Elkins
    #40 Thanks! I'm always glad to have company in the late bloomer category, @Rebel Brown. I wrote about finding my voice at 40 -- by singing in a rock band for the first time. It was a guest post on Whitney Johnson's website. If you search my name with the word dream, the post comes up near the top.
    Rebel Brown
    26/06/2016 #40 Rebel Brown
    #39 Good for you @Sarah Elkins One of the most common ways we give up control is by failing to draw our boundaries and allowing rudeness, people to take advantage and more. I ONLY began drawing my boundaries about 5 years ago. I was a late bloomer. When I first started all heck broke loose around me. People didnt like it that I was standing up for myself. Associates self selected out of my life (Yes!) and Im now left with true friends who are my family. I'm proud of you!
    Sarah Elkins
    26/06/2016 #39 Sarah Elkins
    #35 I had a great moment two weeks ago, @Rebel Brown, one that was building for a few years and finally happened. A woman at work was telling me how angry she was about something (I'll post about it later). When she attacked with "you should have asked me", I said: "Well, (Name), you're not nice to me. If I have a choice, I'll ask someone else. When I come to you for anything, you're rude and dismissive, why in the world would I put myself in that position when I can avoid it?" She was left with her mouth hanging open. I simply called her on her bad behavior, without being insulting or emotional or angry. It was a highlight of my career... which is just a bit bittersweet.
    Franci Eugenia Hoffman
    25/06/2016 #38 Franci Eugenia Hoffman
    #36 You have a great weekend!
    Rebel Brown
    25/06/2016 #37 Rebel Brown
    @Franci Eugenia Hoffman Thanks for sharing my buzz....
    Rebel Brown
    25/06/2016 #36 Rebel Brown
    #34 @Franci Eugenia Hoffman Brilliant. It is jealousy. They're afraid they'll be found out (Imposter) and they know you have more skills than they do (CAT.) The combination sometimes turns into a cornered feline.... sigh. Hope you're having a great Friday:)
    Rebel Brown
    25/06/2016 #35 Rebel Brown
    #33 You're on @Sarah Elkins And yes, men do it too. But they aren't as catty about it. Ive watched em. Matter of fact and to the point. Slit your throat and move on. Women just get so darned emotional and nasty about it.... I've rarely had a guy take it to a personal level. Other than the twit ragers on social media:) Women - ALL the time.
    Franci Eugenia Hoffman
    25/06/2016 #34 Franci Eugenia Hoffman
    #32 And you can probably add jealousy to the equation.
    Sarah Elkins
    24/06/2016 #33 Sarah Elkins
    #28 Men do that too, @Rebel Brown, the backstabbing, etc. I just get so disappointed when it's a woman because I believe so strongly that we should be helping each other. And, of course, the answer to your comment#32 is that you are the face of change - if you are doing a good job, there will always be a few people who don't like you. This is the perfect topic for us - over a bottle of wine and some good chocolate.
    Rebel Brown
    24/06/2016 #32 Rebel Brown
    #31 I have so many stories like that @Franci Eugenia Hoffman Its happened to me in every company I've ever consulted for. There's always one or two women who are threatened when I come in and they decide to show the world they can "beat" me. Which is really funny when you consider the owners of the company are the ones bringing me in. You'd think the women would be smarter... but then these women are always the ones who got their jobs without the skills to actually do them. So they are threatened and I guess just not that savvy. Pain in the butt for me though. Im focused on saving a business and they're playing with arrows. really?
    Franci Eugenia Hoffman
    24/06/2016 #31 Franci Eugenia Hoffman
    #30 That's unfortunate Rebel. I have seen some inappropriate handling by management, CEOs and owners and your story is up there with the worst of the worst. You wonder what made her take the action that she did.
    Rebel Brown
    24/06/2016 #30 Rebel Brown
    #24 @Franci Eugenia Hoffman Here's a story for you. Im working to turnaround a multi billion dollar company that has dropped to half a billion in revenue,. NOT pretty. The in place teams were so resistant to change that the CEO and board told me to bring in my own people and get the job done. So I did. One of the women directors wrote a letter to the SEC and the CEO claiming I was hiring people without approvals and using favoritism to bring in a consulting team. Bascially tried to get me blackballed. She was extremely under-qualified for her job and obviously she was threatened. She got fired for it, but I had to deal with the SEC over the damned letter. As did my client, when we were in the midst of saving the ship. I still dont understand what she was thinking.... Sigh.
    Rebel Brown
    24/06/2016 #29 Rebel Brown
    #23 @Randy Keho First, you're never in the way. 2nd, I could tell you stories that would make your hair curl... Woman after woman backstabbing me (I should say attempting) as I came into the company to consult. I even had one try to run over me in a parking lot. I've learned through the years that men seem to think women get along. In fact... women who have power and who are also insecure about that power will attack another woman with power faster than a duck on a bug. Its ridiculous and we all need to GROW UP and help others...
    Rebel Brown
    24/06/2016 #28 Rebel Brown
    #26 @Sarah Elkins One of my biggest peeves is that women dont support other women. Instead, some women turn into cats and get out their claws. I've dealt with it all my life. Why women dont support other women is beyond me. Only thing I can determine is that these women are insecure., afraid they'll be found out and so they attack rather than share and teach.
    Rebel Brown
    24/06/2016 #27 Rebel Brown
    #21 Absolutely @Laura Mikolaitis I spoke about that topic at a state SHRM meeting. Everyone got excited and I ended up having an overflow crowd in my breakout session. When they went back to their companies, their bosses told them "We dont do that." and that was the end of that. Amazing to me but then we resist change as part of our programming!
    Sarah Elkins
    23/06/2016 #26 Sarah Elkins
    #23 I have had very few professional women as mentors and guides. The majority of my experience with women in leadership positions where I've worked has been absurdly negative. That's why I reach out so much to women of every age, in every position, to encourage support, advocacy, and mentorship of each other. It has been a discouraging ride, to say the least, to see so few women in support of each other in my experience. Now, though, I'm finding all kinds of support (outside of my current position) by women of every generation and I'm gaining hope that we will continue to improve the way women lead and support each other!
    Gerald Hecht
    23/06/2016 #25 Gerald Hecht
    #16 @Rebel Brown yeah, I was merely trying to emphasize your excellent point!
  3. Margaret Aranda, MD, PhD
    Natural healers: "Stop and smell the flowers." "Go outside and get some fresh air." "Hug your dog!" "Touch another in need." "Laughter is the best medicine." "Love." "Share." "Hug." "Music is good for the soul." .....and "Sing to the Tune of your Own Drum."

    Be yourself. You are wonderfully made!
    We love you, and there are plenty of others that love you, too!
    (They just forget to say it!) "Forgive 700 times 7 times a day!"
    "Love thy neighbor."
    Margaret Aranda, MD, PhD
    Relevant

    Comments

    Leckey Harrison
    22/06/2016 #6 Leckey Harrison
    #3 I question how much of this heart dis-ease is stress related. Robert Sapolsky wrote a great book about stress and disease titled, "Why the Zebra Doesn't Get Ulcers." It would also explain via the constant activated state of the glucose/insulin mechanisms why we eat the crappy carbs we do, and, the lack of motivation to work out. This is an issue in the fire districts of the US, where overweight and obesity are bigger issues than in the general population, and heart d-sease is the number 2 killer. Suicide is #1.
    Margaret Aranda, MD, PhD
    22/06/2016 #3 Margaret Aranda, MD, PhD
    #2 It is no fun to be a "Professional Patient." The billions of wasted health care dollars in America could be traded in for longer lives with true Quality. In non-traumatic diseases such as Heart Disease (America's #1 Cause of Death), much of it is self-inflicted by poor diet and no exercise. It is a shame that we are this way now. We need a new culture mindset that focuses more on keeping patients out of the hospital.
    Leckey Harrison
    21/06/2016 #2 Leckey Harrison
    #1 Very true point, taking charge of your own health. That might seem daunting and confusing, but can be done.
    Margaret Aranda, MD, PhD
    16/06/2016 #1 Margaret Aranda, MD, PhD
    Don't expect the doctor to whip out the Prescription notepad to cure all your ails. Keep yourself as healthy and happy as you can, by taking charge of your own health care. Relax, and listen to the music!
  4. Dr. Allen Brown

    Dr. Allen Brown

    15/06/2016
    Tune into our next radio broadcast
    Show Title: "Grassroots Talks Radio"
    Hosted By Dr. Allen L. Brown and co-host Dr. A
    Starts at 11:30 am to noon PST
    Topic: What is God took a day off?
    Call in (657) 383-0162

    We often have high expatiation from God. Does he expect anything in return.
    Dr. Allen Brown
    If God Took A Day Off
    www.blogtalkradio.com Ask not what god can do for you but what you can do for God. We ask a lot from God but do we ever ask God what we can do for...
    Relevant

    Comments

    Margaret Aranda, MD, PhD
    16/06/2016 #5 Margaret Aranda, MD, PhD
    THE DR MARGARET ARANDA SHOW, with Dr A as Co-Host!
    Grassroots TalkRadio Hosted by @Dr. Allen Brown

    What if God took a day off?
    What are the most important issues to consider?
    Let us be logical first....we can not let chaos run.
    Margaret Aranda, MD, PhD
    16/06/2016 #4 Margaret Aranda, MD, PhD
    Anyone can listen to the Show at any time, by simply clicking on it for a fast 30-min talk that feels like a 10 min talk! Love to all!
    Margaret Aranda, MD, PhD
    15/06/2016 #3 Margaret Aranda, MD, PhD
    What if God took a Day Off?
    Listen to Dr Margaret Aranda LIVE
    COUNTDOWN: 1 hour

    Please Share, Tweet, G+, LinkedIn...
    Let us look up.
    Call In number for Listeners: America: (657) 383-0162
    Dr. Allen Brown
    15/06/2016 #2 Dr. Allen Brown
    Tune into my next radio broadcast tomorrow Start 11:30am till noon PST
    Hosted by Dr. Allen L. Brown with Co-host Dr. A
    Join us in a discussion as we ask a very simple question. We ask a lot from God . What if God Took A Day Off?
    Call in to listen by dialing (657) 383-0162 or just click the link below. Fasten your seat belts. We talk about issues and topics others won't touch.
  5. Margaret Aranda, MD, PhD
    You Are Allowed to be an Independent Thinker of Your Own Diagnosis

    You are allowed to search for the diagnosis by visiting 25 doctors, chatting with 25 FaceBook groups, or doing Google Searches on your symptoms. It is all okay. After all, you are the one that lives in your body. Welcome to a place where you are accepted, loved, and encouraged to fight for yourself! I know what it feels like, because I went through it several times, myself.

    The hard way: As a physician who became a patient. We all learn to hate the Emergency Room, you know? And we're all tired of being told, "It's all in your head." I've been made to feel like a liar, a pretender, a 'malingerer,' and have been judged so very corruptly by others who knew perfectly well that I fainted to the floor and had purple lips. But hey, I'm not their Judge. They'll meet their Maker.

    So.....Don't let anyone tell you who you are or how you need to behave, not when you know there is something WRONG with you and no healthcare professional can find it! You are so correct in fighting for your survival! So rest, take a deep breath, and know that we totally "get it."

    ~ Margaret Aranda, MD, PhD

    Former: USC Medical School Grad, Stanford Anesthesiology, Stanford Critical Care, Cenegenics Age Management Medicine, Watertown Univ PhD, Forensics.
    Current: Traumatic Brain Injury with DI (x2), Dysautonomia, Vertebral Artery Dissection with Aneurysm (extracranial), gastroparesis, spinal fusion for spinal stenosis and left with dysphagia (difficulty swallowing), occulo-vestibular dysfunction, vertigo, pre-syncope, nausea, brainstem hypoperfusion.
    NOW: WARRIOR!

    @Kirstie-Sweetie Louise
    David Cannom, MD and Margaret Aranda-Ferrante, MD ...on Eyewitness LATV NEWS
    David Cannom, MD and Margaret Aranda-Ferrante, MD ...on Eyewitness LATV NEWS dysautonomia POTS ME validation real disease unknown frustrating frustration suicide depression wheelchair walker cane naps rest hydration low blood volume...
    Relevant

    Comments

    Margaret Aranda, MD, PhD
    09/06/2016 #3 Margaret Aranda, MD, PhD
    And just how did this Physician turn into a Patient? And what was it? What was her 'mystery' diagnosis? The whole story starts here, on one fine sunny day.
    Margaret Aranda, MD, PhD
    01/06/2016 #2 Margaret Aranda, MD, PhD
    Don't forget to actually watch the short video before commenting. Only then will you 'get' the epiphany, I promise. :-).
    Margaret Aranda, MD, PhD
    30/05/2016 #1 Margaret Aranda, MD, PhD
    What is Dysautonomia?

    In short, it's something that hardly any doctors even know about. It is not usually taught in medical schools. So most regular physicians are unable to diagnose it.

    Dysautonomia is "dys"function of the "automatic" or Autonomic Nervous System (ANS). The ANS control center is in the core of the brain, controlling all the things you don't have to think about: breathing rate, heart rate, blood pressure, even food digestion. Well, those of us with dysautonomia have stomachs and intestines that don't even like to move food forward well. Some people live on liquid meals going straight into their intestine.

    All of us stand up...and then we Faint! We may get "gray-outs" first, where everything looks gray. So while you can get up and go get the door without "thinking" about it, people with dysautonomia have to crawl on the floor so they don't faint. That's pretty much it!

    Let's explore and learn more together!

    Fondly,

    Margaret Aranda, MD, Ph.D.

    You are all my very first beBee "Bees!"
    @Kirstie-Sweetie Louise, @Jim Cody, @Juan Imaz, @Paul "Pablo" Croubalian, @Javier beBee, @Alison Huntley, @Ken Boddie, @Cristian Randieri, PhD -President & CEO of Intellisystem.it @C_Randieri, @Taressa Canestrelli, @Milos Djukic, @Beatriz Lagares Hortas, @Siobhan McCarter, @Heshman Qassim, @Thomas Smart