logoSign upLog in
Out-Thinking Parkinson's by Gary Sharpe - beBee

Out-Thinking Parkinson's by Gary Sharpe

~ 100 buzzes
Posts from www.outthinkingparkinsons.com by Gary Sharpe and other relevant articles about Parkinson's Recovery from my trusted network.
Buzzes
  1. Gary Sharpe

    Gary Sharpe

    07/11/2016
    Video record of first ever session with "Smovey Rings" part 2.
    Next I incorporated these into my dance therapy and walking exercise. I found they greatly assist, as I think the video clearly shows.
    Smovey Rings and Parkinson's Disease Part 2
    Smovey Rings and Parkinson's Disease Part 2 Video record of first ever session with "Smovey Rings" part 2. Next I incorporated these into my dance therapy and walking exercise. I found they greatly...
    Relevant
  2. Paul "Pablo" Croubalian
    I don't know if Gary shared this here, but all I can say is WOW

    This is amazing! Gary is fighting and beating Parkinson's.
    Support his efforts here
    https://www.amazon.ca/Out-Thinking-Parkinsons-Starting-Gary-Sharpe-ebook/dp/B01FJXOZUS/ref=sr_1_1?ie=UTF8&qid=1474473619&sr=8-1&keywords=out-thinking+parkinsons
    What You Won't See at the World Parkinson's Congress #wpc2016
    What You Won't See at the World Parkinson's Congress #wpc2016 Leadership on Parkinson's Disease isn't about talking about it, nor throwing good money after bad at it, nor giving us People with Parkinson's the false...
    Relevant

    Comments

    Gerald Hecht
    23/09/2016 #13 Gerald Hecht
    #11 @Deb Helfrich I don't know --regarding my related runners dystonia (much more limited in scope, I know) and in the continuing WAKE of the flood; I'm always spotting some new dust/dirt thingie which drives me crazy anyway like that last line of stuff that never makes into the dustpan...it quickly starts out as jazz bass and minimal drums with brushes...and really quickly becomes composition/choreography ; the first sweep is the hardest; but ihas a powerful draw if you are open to listening (it's not "medical medical")...but that's gonna happen when our little group finally shows 'em that emotional intelligence is a hindrance to medical progress
    Gerald Hecht
    23/09/2016 #12 Gerald Hecht
    #11 @Deb Helfrich the broom thingie (I mean old school floor sweeping broom) there's always something to sweep real quick inhale, sweep , exhale,...sweep sweep; that's not "medical medical". It's Fred Astaire coatrack medical/not medical fun
    Deb Helfrich
    23/09/2016 #11 Deb Helfrich
    #10 We all know it intuitively but any thoughts on how to make it clinically relevant? There are times when he cannot be prompted to take this medication as the freezing takes down the cognitive mind as well.
    Gerald Hecht
    23/09/2016 #10 Gerald Hecht
    #9 @Deb Helfrich indeed; that darned autonomic nervous system can lull us into forgetfulness: 1) heart and lungs: rhythm section 2) whistling and humming: melody, countermelody, harmony, all kinds of household instruments 🎸 everywhere, glass vessels differently filled, brooms....3) polyrhythmic complexity with arms and legs... before you know it we're all "one person dancing bands"...we never stop composing either; it's a lifelong thang!
    Deb Helfrich
    23/09/2016 #9 Deb Helfrich
    @Gerald Hecht = music is pretty well known for generating emotion - but seems rather good at plain old motion too
    Jena Ball
    22/09/2016 #8 Jena Ball
    #7 Ooo let's keep in touch! Kids are great instigators in general. They bring out the child in others - however old their physical body is ;-)
    Deb Helfrich
    22/09/2016 #7 Deb Helfrich
    #4 @Jena Ball - we might have some thoughts on collaborating.... play is absolutely crucial in opening up our neuroplasticity and nobody is better at play than kids. One of the things @Gary Sharpe and I have in the hopper over the long term is a book about how kids/grandkids can help PwP's initiate movement with some mirroring - Simon says type games among other techniques.
    Gert Scholtz
    22/09/2016 #5 Gert Scholtz
    @Gary Sharpe Well done Gary! You are an inspiration. And quite a dancer too!
    Jena Ball
    22/09/2016 #4 Jena Ball
    I've been following how dance is being used to combat Parkinson's too. It's amazing how the brain will compensate given the chance. I am eager to read Gary's book and see what he has learned.
    Loribeth Pierson
    21/09/2016 #3 Loribeth Pierson
    Wow, that is a BIG change ! Keep up the great work... Sharing!
    Paul "Pablo" Croubalian
    21/09/2016 #2 Paul "Pablo" Croubalian
    Maybe we can get Lady Gaga on board. Gary seems to find her music perfect.
    Deb Helfrich
    21/09/2016 #1 Deb Helfrich
    Thank you so much, @Paul "Pablo" Croubalian! This shows a big change from only being able to lie on the couch - well if he managed to fall in the right way....
  3. Gary Sharpe

    Gary Sharpe

    28/08/2016
    Alan Stainer http://www.outthinkingparkinsons.com/testimonials/alanstainer
    Gary Sharpe
    Alan Stainer
    www.outthinkingparkinsons.com Alan Stainer  mentioned Out-Thinking Parkinson's as a prime example in his article "Technology is There to...
    Relevant
  4. Gary Sharpe

    Gary Sharpe

    08/08/2016
    Gary Sharpe
    Click here to support Out-Thinking Parkinson's Disease by Gary Sharpe
    www.gofundme.com Help us to Continue to Share our Story About the Extraordinary Healing Power of Love & Help Give Hope Back to Sufferers of Parkinson's Disease Everywhere. Dr Gary Sharpe and Deb Helfrich are Out-Thinking Parkinson's using the Power Love and Hope....
    Relevant
  5. Gary Sharpe

    Gary Sharpe

    08/08/2016
    Wonderful testimonial received from @Joel Anderson cc @Deb Helfrich
    Gary Sharpe
    Joel Anderson
    www.outthinkingparkinsons.com A shout out to @Deb Helfrich and @Gary Sharpe. Two individuals who have dared to be brave, dared to do the difficult, dared to make a difference and have epitomized the essence of being bigger than they are. And by doing so, they underscore...
    Relevant

    Comments

    Deb Helfrich
    08/08/2016 #2 Deb Helfrich
    @Joel Anderson, We just cannot thank you enough for taking the time to continuously offer us encouragement. Like everyone, we occasionally get bogged down in the minutia of how challenging portions of each day can be, and then we remember the impact that is rippling far beyond us. And that change in focus changes everything. I think as a society we may have forgotten just how powerful kind words can be!
  6. Gary Sharpe

    Gary Sharpe

    17/07/2016
    Why People with Parkinson's Should Share Their Stories https://lnkd.in/dTSMBZA I know that many people feel that anecdotal evidence is somehow not "worthwhile": that if information does not come from "experts" armed with clinical trial data, then it is not "useful". Here at Out-Thinking Parkinson's, we like to challenge this view. Deb, our Director of Wellness Research, has a saying: "You are the expert in You" Gary Sharpe
    Relevant
  7. Gary Sharpe

    Gary Sharpe

    16/07/2016
    The Role of Self-Awareness on Drug Induced Dyskinesia in Parkinson's Disease.
    http://www.outthinkingparkinsons.com/video-blog/selfawarenessdyskinesia
    You might be shocked, for this was recorded purposefully when the side of effects of my medication were very acute. In fact, I often take another drug to alleviate these medication induced symptoms, so this is not my typical state. The important point to note however is that, over the course of years, without other interventions, what you see here in the initial part of the video will become a more and more frequent state for me. For those who experience such extremes with the condition on a daily basis, our total sympathy – we release this video for you.
    Gary Sharpe
    Relevant

    Comments

    Margaret Aranda, MD, PhD
    22/07/2016 #1 Margaret Aranda, MD, PhD
    The pic doesn't click to a video; awe. But I'll go over there - it's another step for my brain - later on today. Juste gently saying that if you place the actual video right here (it will embed), bet you would get more viewers. You can still edit the comment, yes? I'd strongly suggest making sure all videos are embedded and don't give the links....people want to be spoon-fed, and isn't that predictable? (but for me and my brain injury, it would throw my planned visits on my list awry.) 💃🏽💃🏽
  8. Gary Sharpe

    Gary Sharpe

    12/07/2016
    Will you help True Love beat Parkinson's Disease?
    https://www.gofundme.com/defypdwithlove
    Gary Sharpe
    Relevant
  9. Gary Sharpe

    Gary Sharpe

    07/07/2016
    How Can I Help My Friend with Parkinson's?
    http://www.outthinkingparkinsons.com/articles/howcanihelp

    "At the beginning of this year, I wanted to offer Gary some options based on what had worked for me, on my own body, and that focused on helping his symptoms. We got started on these nutritional basics:

    Reducing alcohol to celebrations only
    Eliminating gluten for a trial period of 3 months
    Adding nuts as his go-to healthy snack
    Using lemon juice to ease the stomach pains caused by poor digestion
    Using Magnesium spray

    The first intervention, as we will call all of the quality of life techniques that we use to reduce the symptoms of Parkinson's Disease, was to ask him to consider alcohol off of the table, except for celebrations. This was simply a practical step, in my mind, as alcohol impairs movement, causes balance issues, and provides no appreciable nutritional content in exchange for the burden on the liver to metabolize its breakdown."
    Gary Sharpe
    Relevant
  10. Gary Sharpe

    Gary Sharpe

    06/07/2016
    Gary Sharpe
    Click here to support Defy Parkinson's Disease with Love by Gary Sharpe
    gofundme.com IF YOU COULD SAVE TRUE LOVE'S DREAM WHILST HELPING STOP THE SUFFERING OF PARKINSON'S DISEASE... WOULD YOU? DISCLAIMER The words herein are about two people drawn together by the irresistible magnetic attraction of soulmates. Please read this...
    Relevant

    Comments

    Deb Helfrich
    07/07/2016 #3 Deb Helfrich
    @Ella de Jong, you are such a dear friend and we appreciate all the ways you support our work and hope to make a difference.
    Ella de Jong
    06/07/2016 #2 Ella de Jong
    Such wonderful results, such great people! Please read and help! (it feels great to help this -worldwide - project!) Even directors and executives can understand what it means to "wanting to reduce the 'consequences of a life with Parkinson's ..."
    Ella de Jong
    06/07/2016 #1 Ella de Jong
    Dear Gary and @Deb Helfrich I truly belief it is going to happen!!
  11. Gary Sharpe

    Gary Sharpe

    04/07/2016
    This video diary entry is raw, real and very honest. http://www.outthinkingparkinsons.com/video-blog/music You will see me break down and cry and release other emotions. This is, I feel now, my most important and special contribution so far. If just one piece our Out-Thinking Parkinson's journey does survive into posterity, I hope it is this.
    Powerful stuff indeed.
    For more about the power of music for movement and emotional balance in the treatment of Parkinson's, please see my website. www.outthinkingparkinsons.com
    Gary Sharpe
    Relevant

    Comments

    Don Kerr
    06/07/2016 #3 Don Kerr
    There are guitar heroes still. That's why I posted the Keiith Urban link but well beyond that your post is incredibly moving and displays your deep passion and commitment to finding a way forward. Very well done @Gary Sharpe View more
    There are guitar heroes still. That's why I posted the Keiith Urban link but well beyond that your post is incredibly moving and displays your deep passion and commitment to finding a way forward. Very well done @Gary Sharpe Shared! Close
    Gary Sharpe
    05/07/2016 #1 Gary Sharpe
    WHATEVER HAPPENED TO ALL THE GUITAR HEROES? Are you big in showbiz? Perhaps you're a rock legend? Do you still believe in the Music? We're holding out for a Hero. We've created a smash hit and proven that Music and Dance Therapy can HEAL people with Parkinson's. Now we need a Backing Singer to help The Song be heard by millions of people affected by Parkinson's all over the world who have forgotten the music. Reading this but not a rock god? Then join our Choir and raise our voice by sharing this Song on.
  12. Gary Sharpe

    Gary Sharpe

    04/07/2016
    To the Medical Embarrassment, the Drug Pushers, the Pharm-Yard Animals, the Hypocritic Oathers, the Sickness Industrialists and the Uncritical Unthinkers: Don't ask for whom the bells tolls. It tolls for you.

    http://www.outthinkingparkinsons.com/garys-blog/complimentaryhealth
    Gary Sharpe
    Relevant
  13. Gary Sharpe

    Gary Sharpe

    03/07/2016
    Correcting Posture #1 $1.00 donation to Out-Thinking Parkinson's Project
    http://www.outthinkingparkinsons.com/downloads/correcting-posture-1
    In this video, Gary discusses how people with Parkinson's tend to allow their posture to degenerate into a classic stooped position and explains why this has very poor consequences for health. Gary then demonstrates a simple method which with daily use has allowed him to correct his posture so that he no longer is stooped by his Parkinson's. He further shows how this technique allowed him to improve his walking too. 4 minutes, mp4 format.
    Gary Sharpe
    Relevant

    Comments

    Margaret Aranda, MD, PhD
    22/07/2016 #1 Margaret Aranda, MD, PhD
    I know that @Dr. Allen Brown also has the $1 Campain for Homeless Teens and Veterans on the streets of Los Angeles....hat's off to you for this worthy endeavor, too! I can see it is good for women, especially the pre-menopausal, to avoid imbalance, falling, fractured hips, ICU stays, nursing homes, and never going "home" again. Please all, keep your elderly off of ladders! "Do Not Fall!" for women & men all the way! Great for Parkinson's and Out-thinking to others, too. What works for you will help many others and that is 🌹AweSome🌹! A Gift 🌹!
  14. Gary Sharpe

    Gary Sharpe

    03/07/2016
    We are currently desperately seeking ways to fund the continuation of the Out-Thinking Parkinson's website. Our preferred method has always been to provide something of value in return for financial support.
    http://www.outthinkingparkinsons.com/downloads
    One idea we have come up with is to enable our supporters to download our educational videos for a very small fee. You can now browse our library, mix and match for your own requirements and build your own offline narrative. These videos will show how I have relearned and continue to progress rapidly my control over Parkinson's Disease. By watching these videos often, we hope this will provide people with Parkinson's around the world the motivation and proof of concepts they need that, with dedicated and persistent practice, they too do not have to suffer the standard route to terminal decline.
    Gary Sharpe
    Relevant
  15. Gary Sharpe

    Gary Sharpe

    01/07/2016
    Magnesium for General Wellness
    http://www.outthinkingparkinsons.com/resources/magnesium-book

    The book discusses how magnesium is essential for good health across a wide range of conditions and suggests many of us are chronically deficient in this essential element. Fortunately, correcting this is simple, effective and relatively cheap.

    We recommend anyone who is interested in improving wellness to read this book, not only due the importance of magnesium, but also for improving understanding of how simple non-medical, non-surgical interventions can make a huge difference to quality of life.
    Gary Sharpe
    Relevant
  16. Gary Sharpe

    Gary Sharpe

    30/06/2016
    Stress Balls on Elastic String with a Velcro Strap
    http://www.outthinkingparkinsons.com/resources/stress-balls
    trying to reduce my drug burden and, frankly, getting myself into a right old mess, I have had to revisit our movement recovery techniques. The problem is we have explored so many now, that some got lost by the wayside as I improved. The silver lining is that, due to this set-back which I've been experiencing, I've rediscovered the best intervention we ever came up with. I'd forgotten just how powerful these techniques we developed, based on a single very cunning original concept by @Deb Helfrich, are.
    Gary Sharpe
    Relevant

    Comments

    Deb Helfrich
    30/06/2016 #1 Deb Helfrich
    We do find that making things a habit takes a lot of dedication, but persistence pays off - and the muscle memory aspect is also crucial to the gains that are achieved over time.
  17. Gary Sharpe

    Gary Sharpe

    24/06/2016
    Thanks to @Paul "Pablo" Croubalian for his review on Amazon.ca
    5.0 out of 5 stars If you have Parkinson's Disease Or know someone who does, buy and read this book!!!
    ByPaul Croubalianon June 20, 2016
    Format: Kindle Edition|Verified Purchase
    Doctors diagnosed Dr. Gary Sharpe with early-onset Parkinson’s at 35. This is not a book about theories, possibilities, or lost hope. This book details Gary’s insistence on living a full life in spite of his disease. Gary has always been a thinker. He has always been a growth hacker. This book describes how Gary hacked Parkinson’s.

    Gary proves, that under the right conditions, there is hope. No, not just hope, there is success. The narrative of long, slow decline is not the only possibility. Watching Gary stifle the tremors on video, in real-time, is uplifting. It's a true testament to the power of the human mind to face and conquer all obstacles.
    Gary Sharpe
    Relevant
  18. Gary Sharpe

    Gary Sharpe

    23/06/2016
    This testimonial comes from @Cheryl Snapp Conner came in the form of a full length article on Forbes!
    Gary Sharpe
    Cheryl Snapp Connor
    www.outthinkingparkinsons.com Cheryl wrote this article about us for...
    Relevant

    Comments

    Cyndi wilkins
    23/06/2016 #3 Cyndi wilkins
    Excellent article Cheryl...I really hope Microsoft can appreciate the priceless gift they have received in these two amazing souls...LinkedIn has a unique opportunity here to expand it's vision and support those who seek to change other peoples lives for the better;-) This isn't about just making professional connections anymore...This is about helping others through shared experience...This is about human beings caring about people they have never met, but wish to give of themselves in service to creating a better world...You can't put a price tag on that!
    Deb Helfrich
    23/06/2016 #2 Deb Helfrich
    #1 Thank you so much @Javier beBee for all the personal support you provide, we appreciate it so much. As well, I am so thankful that beBee exists because our long term plans include using this platform extensively to share health and wellness knowledge and support. The foundation of any career is good health OR learning to create a career around one's current state and challenges. Digital platforms provide opportunities for so many people worldwide and you should be highly commended for the spirit of positive engagement and the dedication you continuously show towards your user base. beBee is such a success story already, it is inevitable that the growth will skyrocket.
    Javier beBee
    23/06/2016 #1 Javier beBee
    Very nice article from @Cheryl Snapp Conner about @Gary Sharpe and @Deb Helfrich ! http://www.forbes.com/sites/cherylsnappconner/2016/06/23/he-used-social-media-to-out-think-the-symptoms-of-parkinsons-now-this/#39bb516d48fd
  19. Gary Sharpe

    Gary Sharpe

    23/06/2016
    Gary Sharpe
    Using Props and Acting to Get Moving with Parkinson's Disease
    www.outthinkingparkinsons.com At the core of the concepts behind Out-Thinking Parkinson's is the understanding that the pathways to movement in the brain are manyfold and hence that, with the aid of the right diet and supplements together with the optimal environment and...
    Relevant
  20. Gary Sharpe

    Gary Sharpe

    21/06/2016
    THIS is what TRUE LOVE is ... https://lnkd.in/dKQyZRB

    "if you could save true love's dream AND help stop the suffering from parkinson's disease.... would you?"
    Gary Sharpe
    Relevant
  21. Deb Helfrich

    Deb Helfrich

    02/04/2016
    Growing, evolving, changing - we all struggle a bit with this, maybe this perspective will help a few others:
    Deb Helfrich
    Is Movement the Definition of Life?
    www.outthinkingparkinsons.com And so I must go on. Evolve into the changes and learn, again, to embrace the growth that I am going to go through to get where I want to go.The part of this phase that brings up my curiosity is that where I need to go is to the side of a man...
    Relevant

    Comments

    Deb Helfrich
    15/06/2016 #3 Deb Helfrich
    Is Movement the Definition of Life?

    I needed to remind myself of my WHY today. How about you? Is life going in the direction you chose?
    Javier beBee
    02/04/2016 #2 Javier beBee
    Welcome to bebee !
    Deb Helfrich
    02/04/2016 #1 Deb Helfrich
    Testing @Paul "Pablo" Croubalian - getting my feet wet, and of course you beat me to it!
  22. Gary Sharpe

    Gary Sharpe

    20/06/2016
    Wise words about being a carer of a person with Parkinson's from Evelyn
    Gary Sharpe
    Evelyn Earle Shoup
    www.outthinkingparkinsons.com Some very good information that perhaps will help to teach people how to treat those with Parkinson's. Very harmful are the following: criticism about things the person with Parkinson's would like to do, or take care of, but can't any more, to...
    Relevant
  23. Gary Sharpe

    Gary Sharpe

    20/06/2016
    http://www.outthinkingparkinsons.com/video-blog/helpinghand
    "A Helping Hand with Movement Recover"
    In my previous diary entry,
    SIMPLE, POWERFUL METHOD FOR UNSTIFFENING HANDS AND FINGERS,
    I showed how, by developing our ideas about incorporating
    STRESS BALLS ON ELASTIC STRING WITH A VELCRO STRAP,
    into our gentle movement therapy, we came up with a simple exercise regime to open up the fingers of my hands. The "Sharpe-Helfrich method" is discussed further in
    SIMPLE BUT POWERFUL MOVEMENT RECOVERY METHOD.
    In the sequel video included in this post, it is becoming ever clearer that our concept of "applied neuroplasticity" does work. Here, I demonstrate the further evolution in my own movement, resulting from practicing these ideas over and over again...
    Gary Sharpe
    Relevant

    Comments

    Lisa Gallagher
    20/06/2016 #1 Lisa Gallagher
    So much respect for you @Gary Sharpe and @Deb Helfrich, kudos on this!
  24. Gary Sharpe

    Gary Sharpe

    17/06/2016
    A Companion Piece to my "Prelude to Parkinson's" by my Heart's Companion, @deb helfrich , which together form the introduction of our book "Starting the Journey", which documents our "Out-Thinking Parkinson's" Journey and all we have learned along the way http://www.outthinkingparkinsons.com/articles/wellness Gary Sharpe
    Relevant
  25. Gary Sharpe

    Gary Sharpe

    16/06/2016
    @Deb Helfrich's very clever ideas about alternative uses for a Grapefruit Spoon https://uk.pinterest.com/pin/263671753163396205/ What does this have to do with Parkinson's and Applied Neuroplasticity? Find out in her new article "Grapefruit Spoons and Gratitude" http://www.outthinkingparkinsons.com/debs-blog/grapefruitGary Sharpe
    Relevant
See all