- Producer22/04/2016How To Get Moving Again with Parkinson's DiseaseAt the core of the concepts behind Out-Thinking Parkinson's is the understanding that the pathways to movement in the brain are manyfold and hence that, with the aid of the right diet and supplements together with the optimal environment and...
- Producer15/11/2016Love hurtsIt's Care-giver month again....think I'll have a nap. Don't get me wrong - for other carers, I care. I'm sure they do a stellar job and remain blissful, serene and contented. Well done!Alas, I'm the other type: bemused, confused and cranky with it!...
Comments15/11/2016 #5 Deb HelfrichFrom my humble perspective, embodying the dragon, for your own good, is the most sane approach. Get thee to someone who can begin to comprehend. It is isolating trying to explain something that is inexplicable.
And self-care! I see the challenge so clearly. The need for vigilance. But that very vigilance is actually probably part of what created the situation to begin with. It will be reflected back on you at the most poignant of moments. After caring for weeks non-stop, the slightest diversion of focus will result in some sort of catastrophe either physical, or much, much worse, the allegation that insinuates that you have been selfish.
In a very tiny, miniscule way, I can identify the cycle with my puppy days. It wasn't the damage to the objects being chewed so much as the inability to see chewing and swallowing as harmful that ravages the companion's mind, which is walking its own tightrope of sleep depravation. Wondering if there are any puppy-proofing sorts of options in your vastly more complex scenario?
Caring about you from afar!15/11/2016 #3 Lisa Vanderburg#1 Oh, I am touched by your words and your wisdom my friend, @Ali Anani! I am so far from a super-anything, I look at amoebas in awe :)
Life is one long prat-fall; a losing battle with decrepitude. It's the same for everyone - those with chronic disease (especially neurodegenerative) just KNOW they're losing earlier. Borrowing from your pensive and beautiful buzz, Adaptations to Emotional Flooding, I just have a little root-rot!15/11/2016 #1 Ali AnaniI am deeply touched by your buzz @Lisa Vanderburg. Your story is full of anticipation and I understand fully your saying that anticipation makes us edgy. I almost "melted" like an ice cube while reading " I have strong opinions, but clearly more lily-livered about my own set of values, because the lines keep changing or blurring. They didn’t always. If it appears I’m describing a stranger; we’re getting closer"! This is a deep description of many of us and I am not sure I could ever expose my feelings so eloquently and creatively. I wonder how do you make the time to write and comment. You are a super human.
- 07/11/2016Video record of first ever session with "Smovey Rings" part 2.
Next I incorporated these into my dance therapy and walking exercise. I found they greatly assist, as I think the video clearly shows.Smovey Rings and Parkinson's Disease Part 2 Video record of first ever session with "Smovey Rings" part 2. Next I incorporated these into my dance therapy and walking exercise. I found they greatly...
- 10/11/2016Day 3 exercising with [and without] "Smovey" Rings and the day after receiving my second treatment of K.O.R.E therapy from Tessa Donovan. I doubt anyone who has not followed my Journey of Resurrection from 7 years of degeneration into Parkinson's Disease would have a clue about my diagnosis from watching this. Indeed, this is the first time even I cannot see any of the tell tale signs.
I cried when I watched this back with my Mum.Day 3 with Smovey Rings and Parkinson's Disease Day 3 exercising with [and without] "Smovey" Rings and the day after receiving my second treatment of K.O.R.E therapy from Tessa Donovan. I doubt anyone who...
Comments10/11/2016 #1 Charles David UpchurchOutstanding progress, @Gary Sharpe !
I try to keep my comments and my excitement in check as I have seen you break through (or work around) one challenge after another. Sometimes your leaps forward cause me to forget the big picture.
I realize, as you do, that you can't expect every day to be a breakthrough, yet every day you keep hope alive that you will at least maintain most of your progress to date, and--when the time is right--make another step (or leap) forward.
I celebrate your struggle as much as I do your progress. You have given us all a lesson in focus, a lesson in being open to possibilities, a lesson in letting go of anger and pain, and a lesson in courage, friend.
- Producer08/10/2016Yup. It's all about him.....https://www.linkedin.com/today/author/0_0-YtfauRWrgykW1NKuvu6Q?trk=prof-smAnd that's where you can find all my snarky posts about Parkinson's Disease. I'm stepping out (from LI) awhile to test the waters. All you really need to know about me is that...
- 21/09/2016I don't know if Gary shared this here, but all I can say is WOW
This is amazing! Gary is fighting and beating Parkinson's.
Support his efforts here
https://www.amazon.ca/Out-Thinking-Parkinsons-Starting-Gary-Sharpe-ebook/dp/B01FJXOZUS/ref=sr_1_1?ie=UTF8&qid=1474473619&sr=8-1&keywords=out-thinking+parkinsonsWhat You Won't See at the World Parkinson's Congress #wpc2016 Leadership on Parkinson's Disease isn't about talking about it, nor throwing good money after bad at it, nor giving us People with Parkinson's the false...
Comments23/09/2016 #13 Gerald Hecht#11 @Deb Helfrich I don't know --regarding my related runners dystonia (much more limited in scope, I know) and in the continuing WAKE of the flood; I'm always spotting some new dust/dirt thingie which drives me crazy anyway like that last line of stuff that never makes into the dustpan...it quickly starts out as jazz bass and minimal drums with brushes...and really quickly becomes composition/choreography ; the first sweep is the hardest; but ihas a powerful draw if you are open to listening (it's not "medical medical")...but that's gonna happen when our little group finally shows 'em that emotional intelligence is a hindrance to medical progress23/09/2016 #10 Gerald Hecht#9 @Deb Helfrich indeed; that darned autonomic nervous system can lull us into forgetfulness: 1) heart and lungs: rhythm section 2) whistling and humming: melody, countermelody, harmony, all kinds of household instruments 🎸 everywhere, glass vessels differently filled, brooms....3) polyrhythmic complexity with arms and legs... before you know it we're all "one person dancing bands"...we never stop composing either; it's a lifelong thang!22/09/2016 #7 Deb Helfrich#4 @Jena Ball - we might have some thoughts on collaborating.... play is absolutely crucial in opening up our neuroplasticity and nobody is better at play than kids. One of the things @Gary Sharpe and I have in the hopper over the long term is a book about how kids/grandkids can help PwP's initiate movement with some mirroring - Simon says type games among other techniques.
- 01/09/2016Why There is More to Parkinson's than just Neuro-degenerationniume.com OK, World, here is your proof positive that Parkinson's is not just a "neurodegenerative condition" but that there is much more to it. The research results on walking with the disease which I present in this video I hope will be viewed as quite...
Comments02/09/2016 #6 AnonymousYour intentions are so pure, I am at once, drawn to and awed by the essence of your journey: "I share this for the same reason I share all my posts - to Inspire, Motivate and Demonstrate that there is always Hope and through Loving Kindness we Humans can rewrite our own Stories." It doesn't get any better than that dear Gary and I thank you for all that you are and all that you are doing!
- 26/08/2016Trailer for "Out-Thinking Parkinson's: The Journey", a Film by Gary Sharpe and Deb Helfrich http://www.outthinkingparkinsons.com/downloads/ "Out-Thinking Parkinson’s: The Journey” is a compelling, inspirational and educational film, not only about...
Comments26/08/2016 #6 Deb Helfrich#1 Thanks for that pointer, @Dean Owen, I also agree that we need to shorten the trailer. We've got a lot of footage, input from others, including their own video experiments and some interesting hypotheses that will ultimtately. We'd love to get connected with anyone in the documentary business for some mentorship on next steps!26/08/2016 #1 Dean OwenA seriously important video that I hope goes viral. Nicely done Gary. I seriously hope that people will watch the whole video. Such is the weird society that we live in that many will turn off within the first minute. They need to see what happens at 1 min 14 secs, then they will want to watch the rest.
- Producer23/06/2016When someone you love has Parkinson's DiseaseMy grandfather had Parkinson's Disease for as long as I can remember. As I got older it got worse for him, I was still young and I remember laughing along with my cousins when he tried to sip his coffee. He always used a saucer and I can remember...
Comments23/06/2016 #5 Gary Sharpe#4 and I am the living proof of what @Deb Helfrich just said. I still have bad days (having one today), but eating enough calories, keeping the blood sugar up and drinking plenty of water is so important when re-starting to move again. The problem with Parkinson's is the signals between body and brain get all messed up so we tend not to "get" that we need fuel or water or oxygen! Thanks @Gerald Hecht - back at you23/06/2016 #4 Deb Helfrich@Dave Rynne - what @Gerald Hecht is alluding to is some of his old research on exercise. It is absolutely, positively the case that despite all the signals from the brain to stop moving, that it is important to continually build in a routine of movement. There are a number of levels here. First of all, just succumbing causes degeneration in all the muscles, tendons, etc of the body to become rigid and weak, exacerbating the symptoms. Then there is the oxygenation that occurs when we focus on movement, which doesn't need to be anywhere near what we commonly consider 'exercise'. Finally, movement and keeping busy reduces stress at a biochemical level because stress uses dopamine.
Movement is the Definition of Life and even though all the signals are asking him to stop moving, it is utterly important to continue moving through the stiffness, rigidity, tremors, and tics. This needs to be a conscious daily decision in the arsenal of living with PD and is something that it is crucial for the caregiver to be firmly dedicated to supporting. I would be honored to talk with your mom if she is interested.23/06/2016 #2 Gary SharpeThank you for helping raise awareness and this honest look at the impact of Parkinson's @Dave Rynne. Our resource which @Gerald Hecht mentioned is here www.outthinkingparkinsons.com - I also have created a Parkinson's Hive here on beBee and will share your post there.
- 16/06/2016Cycling for Freezing Gait in Parkinson's Disease A 58-year-old man with a 10-year history of idiopathic Parkinson's disease presented with an incapacitating freezing of gait. However, the patient's ability...
- 01/06/2016I was asked to share this info about a new development to help with tremors, and I am delighted to do so.Fawad Bhattiwww.outthinkingparkinsons.com I hope you are doing well. I really appreciate the work you are doing for Parkinson's community. Sadly, my family had also been affected by Parkinson's disease, so I have been working on trying to make the lives of my family and millions of...
- 27/05/2016Prelude to Parkinson's Diseasewww.linkedin.com Losing Myself: Gary’s Prelude Sometime in 2009 to July 2015 My name is Gary Sharpe. In 2009 (the exact date escapes me) I was diagnosed with Early Onset Parkinson’s Disease. This is the story of how...
In this article I have collected together a number of resources and case studies which demonstrate unequivocally that inevitable decline is simply not true and that there is always the possibility of hope. These then are the stories of our fellow travelers who've already escaped from both Parkinsonism and the falsehoods of the medical diagnosis narratives, or are helping others to do so.
- 19/05/2016Learning to Walk Again with Parkinson's Disease and a Pair of Fitflops People with Parkinson's tend to shuffle when we "walk". We take very small steps, hardly lifting our feet off the floor at all. We often trip over things...
- 14/05/2016The News of the Century About Parkinson'swww.linkedin.com BIG NEWS! This has taken me 4 months of full time effort, knowledge assimilation, building the confidence of my own evidence. This is not something anyone can do overnight - the underlying injury...
- 05/05/2016The Sleeper Awakens.
As I write this it is four months to the day since Deb and I started the Out-Thinking Parkinson's project. Throughout this time, Deb has repeatedly challenged me to answer this question:
"Why do you think you developed Parkinson's?"
Deb's question is not really about the medical reasons for my Parkinson's diagnosis, but seeking the deeper truths of what it actually means to have Parkinson's. Until very recently, I had no answer. But as I've improved my condition, both mental and physical, I'm more able to tune in to what is actually happening in my mind and body when the Parkinson's takes hold. As I've pushed the envelope of my understanding and incorporated more interventions into my own life, tested, tried, self-experimented, it has become clearer to me.
The answer to Deb's question is, for me, a Very Uncomfortable Truth. While I have no idea why my Parkinson's started, what biological or environmental factors caused it, looking back now, I believe I understand why it developed and progressed so quickly....
Read more: http://www.outthinkingparkinsons.com/articles/wakeup
- 05/05/2016http://www.outthinkingparkinsons.com/resources/boards As a Digital Media expert, I have always found value in Pinterest as a medium for collecting and sharing information on specific topics. Pinterest boards can be thought of as sections of a library. So when we started the Out-Thinking Parkinson's project, I had in mind that this would be a very useful way to start building information resources. In fact, I've been doing this in the background and these boards are now reaching a state of maturity. I'm hoping they will be useful to others
Join us on Pinterest too: https://uk.pinterest.com/outthinkingpark/
- 04/05/2016Our Director of Wellness Research @Deb Helfrich Deb is currently writing a post on the subject of posture for People with Parkinson's. In the meantime she further suggests "but if you have pain and you think your posture is part of the problem, I highly recommend go get this book now!"8 Steps to a Pain-Free Back: Natural Posture Solutions for Pain in the Back, Neck, Shoulder, Hip, Knee, and Foot: Amazon.es: Esther Gokhale, Susan Adams: Libros en idiomas extranjerostarget.georiot.com Lee Opiniones y Compra en Amazon.es | 8 Steps to a Pain-Free Back: Natural Posture Solutions for Pain in the Back, Neck, Shoulder, Hip, Knee, and Foot | Esther Gokhale, Susan...
- Producer04/05/2016The Parkinson's Shuffle No More Thanks to Deb Helfrich and a Pair of FitflopsOver the course of the weekend I did something, with a little help from my friends, which I believe turns the world of Parkinson's Disease - and perhaps neurological disorders in general - completely upside down. I relearned how to walk...
- 03/05/2016In this part of our resources section:
I want to tell you about the footwear technology which allowed me to relearn a lot about how to walk properly again over a period of just two days. I also explain as fully as possible the process of how I did it. It is my hope that this give other People with Parkinson's a springboard to help them to start moving forwards again.
- 02/05/2016http://www.outthinkingparkinsons.com/articles/light Have you heard about Light Therapy for Parkinson's? More to the point has your neurologist or surgeon? An Australian institute has been using this effectively for years, according to substantial papers published in international journals, including "Nature". So why did it take our Director of Wellness Research to shine a light on it for the world?
- 30/04/2016BREAKING NEWS: PARKINSON'S CRACKED?
Here Dr Gary Sharpe, PhD demonstrates an exceedingly simple way which he has found that seems to allow him to repeatedly switch his Parkinson's symptoms off and return to movement. If People with Parkinson's would like to try this themselves, Gary urges them to start gently and build up very safely, very slowly and supervised to this point of vigorous head and face rubbing strategy, perhaps over a number of days and to stop if any adverse reactions are indicated. If they do try this, at their own risk, he requests them to feedback their results as they slowly build up.
He suggests we use social media for the biggest "clinical trial" of Parkinson's in history... The feedback will allow him and other scientists to determine which cohorts of the Parkinson's community this works for and which factors affect the outcomes. In turn this will allow them to build up more and more optimized and bespoke solutions quickly. Gary sure hopes this is not unique to himself and others can benefit from his remarkable finding! Even if it only works "out-of-the-box" for a small percentage, it points to a new research frontier for Parkinson's research.
Gary created this post directly after making the video - he was able to type and think freely - he is currently switched completely on. He finds that less vigorous head and face stroking also allows him temporary relief enough to perform small tasks. Again, we are in new territory and Gary urges a cautionary approach.BREAKING NEWS: PARKINSON'S DISEASE CRACKED? [No sound] BREAKING NEWS: PARKINSON'S DISEASE CRACKED? [No sound] Here Dr Gary Sharpe, PhD demonstrates an exceedingly simple way which he has found that seems to...
- 29/04/2016You can now support me in Out-Thinking Parkinson's and help me ensure the information is always free for everyone affected by Parkinson's Disease by buying me a virtual coffee http://www.outthinkingparkinsons.com/downlo…/buygaryacoffee1
"If this article was helpful or beneficial to your quality of life and you would like to show your appreciation and support me in my dedication to the cause of Out-Thinking Parkinson's, why not buy me "a cup of coffee, mixed with a spoonful of coconut oil, with a gluten free almond cake on the side" ($5) and receive a special "thank you" e-card in return."