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Parkinsons Disease - beBee

Parkinsons Disease

~ 100 buzzes
A hive to share information, research and questions about Parkinson's Disease, managed by outthinkingparkinsons.com
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  1. ProducerGerald Hecht

    Gerald Hecht

    07/08/2016
    Another Type of Paradigm Shift
    Another Type of Paradigm ShiftTraditionally, students have been introduced to the study of Pharmacology by dividing the subject into two broad subfields; 1) Pharmacokinetics: The study of the administration, absorption, metabolism and elimination of drugs from the body, and 2)...
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    Comments

    Lisa Vanderburg
    11/01/2017 #37 Lisa Vanderburg
    Okay @Gerald Hecht...you know I'm a slooooooow learner. This is absolutely fascinating (I think)! Just to get it right without pictures, do you mean an interface [of sorts] between para-vascular spaces in the human cerebral cortex - that is your way in? How is that considered non-invasive; not an accusation but you are sweet enough to understand my academic prowess. From that most impenetrable of crossings (unless you're a virus), the BBB with its 400 miles of blood vessels is a bit of a bastard to overcome, no doubt. What about intranasal induction like Prof. Frey....does it stand a chance?
    Sorry...lots of q's, like @Deb ๐Ÿ Helfrich. This is a real promise - I applaud you!
    Gerald Hecht
    09/08/2016 #36 Gerald Hecht
    @Joanna Hofman Let us hope that we can see this thing throug to its full potential; we all have been touched either directly or in the suffering of a loved one; and it needn't continue; the only obstacles are corporate greed, politics, etc. This is to important --as we all know...#33
    Gerald Hecht
    09/08/2016 #35 Gerald Hecht
    @Graham๐Ÿ Edwards Thank you for your kind words; they mean a lot coming from you. I hope that forces of darkness do not become obstacles toward seeing this come to fruition! #32
    Gerald Hecht
    09/08/2016 #34 Gerald Hecht
    @Mamen ๐Ÿ Delgado a Thank you so much for your kind thoughts!#31
    Joanna Hofman
    08/08/2016 #33 Joanna Hofman
    I love this buzz, @Gerald Hecht.
    Graham๐Ÿ Edwards
    08/08/2016 #32 Graham๐Ÿ Edwards
    You feed the little "science guy" in me... thank you @Gerald Hecht
    Mamen ๐Ÿ Delgado
    08/08/2016 #31 Mamen ๐Ÿ Delgado
    #28 You are welcome my dear @Gerald Hecht, your post left me speechless... Kudos to you!!! ;)
    Gerald Hecht
    08/08/2016 #30 Gerald Hecht
    @Deb ๐Ÿ Helfrich There are clues as to potential escapes...biochemically, there is the fact that dopamine itself (ironically, and "teasingly" in the context of the Perispinal administration route) IS a neurotransmitter, which, in the periphery, CANNOT CROSS THE BLOOD-BRAIN-BARRIER...most of the "discussion" regarding this consists of avoiding the full discussion and starting another --on the role of peripheral dopamine as a QUITE SPECIFIC regulator of Renal Blood Pressure...whereas the functionality equivalent catecholamines elsewhere in the peripheral circulatory system are epinephrine (adrenaline) and norepinephrine (noradrenaline). To me, although this is so vague and intuition based as to barely qualify as a hunch...perhaps; there is some sort of (stem cell commonality?) between cells comprising portions of the kidney, and dopaminergic producing neurons in at least one of the 4 dopaminergic circuits in the CNS. We know that the dopamine in the periphery cannot enter the brain. We know that both the brain and periphery contain dopamine. To me that is "strange" --it "feels" like the disconnect there shouldn't just be left "dangling" --dismissed with a shrug (as tonsils and the appendix once were). This could be worth further exploration (in fact, it now seems to have captured my attention). #24
    Gerald Hecht
    08/08/2016 #29 Gerald Hecht
    Deb ๐Ÿ Helfrich
    08/08/2016 #24 Deb ๐Ÿ Helfrich
    #20 He has been proving it - the substania nigra is likely effect, not cause, maybe only one of them. He can get native dopamine functioning via exercise, but then ingesting a pill causes overload into dyskinesia or even shutdown. We were just talking yesterday that I wish we had a picture of his sn from January and could compare it to one today, I'd put money that there would be a lot more functioning cells. But then he has to take a pill and those functioning cells, say, well, ok, maybe you don't want us back in production.... vicious cycle.
    Gerald Hecht
    08/08/2016 #22 Gerald Hecht
    @Javier ๐Ÿ beBee Thank you very much.
    Gerald Hecht
    08/08/2016 #21 Gerald Hecht
    @John White, MBA thank you so much.
    Gerald Hecht
    08/08/2016 #20 Gerald Hecht
    #18 @Deb ๐Ÿ Helfrich @Gary Sharpe this I am still thinking on...it's becoming closer to inescapable that the dopaminergic depletion in the substantia nigra; is (not a red herring)...but not an etiology... I'm going to read @Ali Anani piece first, while I can, before school carpool, but --don't you think that just as an X-Ray can lead to a physician saying: "fractured tibia"...it can't lead them to say: "you fell out of a tree two hours ago at your friend John's house on 3rd Street and landed with your tibia at an angle of X degrees from vertical"... I think the range of conditions which Perispinal etanercept can treat is a big clue that a loss of pigmentation in the sn is telling us what the X-Ray can. It's not telling us what the X-Ray can't. The analogy was rushed; its clothes far from tailored...still; more soon.
    Gerald Hecht
    08/08/2016 #19 Gerald Hecht
    @Ali Anani, I am now going to read your piece (in peace)...#16
    Deb ๐Ÿ Helfrich
    08/08/2016 #18 Deb ๐Ÿ Helfrich
    @Gary Sharpe - there are some important things to notice in this picture. We talked about the content as far as why is l-dopa still being administered orally.... when it needs to be laser-focused in the brain.
  2. ProducerMax๐Ÿ J. Carter
    Family and what they teach us
    Family and what they teach usMy dad has Parkinson's Disease.ย My dad's legs don't work so well and he is supposed to use a walker, he doesn't and at times it feels as though the roles have reversed. I get why though.ย As a contractor my dad was a power horse. His own boss...
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    Comments

    Max๐Ÿ J. Carter
    11/01/2017 #12 Max๐Ÿ J. Carter
    #10 @David Navarro Lรณpez it appears to me you honor him daily in the way you live.

    I love the tile concept you shared with us and thank you for doing so.

    It reminds o the old line "The older I got, the smarter my father got."

    I agree I think our dads would have been great friends and I appreciate the friendship that you and I have been building slowly over time.
    David Navarro Lรณpez
    11/01/2017 #11 Anonymous
    Sorry, I mean "My Father passed away on 2008 and there is no single day without my mind flying to him."
    David Navarro Lรณpez
    11/01/2017 #10 Anonymous
    In Spain we use to make tiles with sayings or adages on it and hang them in the wall like this https://3.bp.blogspot.com/-MSbo-Mp78GA/Vy-PV9PFdlI/AAAAAAAAUBo/VNsdi7Z3EoE0FsV-2oYuackN6vsKY4mqwCLcB/s1600/azulejos%2Bcon%2Brefranes.jpg
    I remember a very good one, which I am translating for you:
    At 5 years old, Papa knows everything
    At 15, there are things Papa doesn't know
    At 25, Papa knows nothing
    At 35, maybe Papa was right in something
    At 45, I am going to ask Papa
    At 55, I wish I had my Papa
    My Father passed away on 2008 and there is no single day my mind flies to him.
    I was lucky to have him, learned a lot from him. He never was too tired to teach me something. Whenever something had to be done at home, fixing a door, painting, whatever, he always took me with him and made me help him, explaining me why and how he was doing it, letting me do it, even if wrong, to learn.
    In many ways, when you described yours, it made me think of mine. I am sure they would have been good friends.
    I believe we both have been fortunate with our respective fathers.
    I saw him going down in his health, day by day. However, he never left his spirit going down.
    I hope I will honour him. Close
    Max๐Ÿ J. Carter
    11/01/2017 #9 Max๐Ÿ J. Carter
    Yo @David B. Grinberg thank you for sharing this.
    Max๐Ÿ J. Carter
    11/01/2017 #8 Max๐Ÿ J. Carter
    #5 Thank you @Ian Weinberg wise words of advice.
    Max๐Ÿ J. Carter
    11/01/2017 #6 Max๐Ÿ J. Carter
    #3 It felt like a living eulogy as I was writing it. Kind of preparing myself in away for the inevitable.

    I found with my dad that there was this unspoken competition for alpha dominance so to speak that went on for too many years. It has done both of us a world of good to set that aside and work it out. I think a lot of fathers and sons go through it and I see it in mothers and daughters at times

    I remember the old movie THE BREAKFAST CLUB and that I am calling it an old movie is making me feel old ;)

    When a teen girl is asked why she wants to run away she says "My home life is unsatisfying."

    The response summed up was so is everyone else's or we would live with our parents for ever. I only hope to not have the same rfit with my own son and work at it with him. He's 12.

    Thank you @Lisa Vanderburg for your kind words, they are felt and appreciated.
    Ian Weinberg
    11/01/2017 #5 Ian Weinberg
    Good stuff @Max๐Ÿ J. Carter Savor the moments, support purposeful business
    Julio Angel Lopez Lopez
    11/01/2017 #4 Julio Angel Lopez Lopez
    I'm doing it @Max๐Ÿ J. Carter
    He is 90 on the 17th of this month.
    I have the impression that his gaze is lost in memories and I hear his stories repeated over and over again, giving him a face of surprise and laughter as if he told me for the first time.
    I own him.
    Thanks
    Lisa Vanderburg
    11/01/2017 #3 Lisa Vanderburg
    Wow...that hit home, Max. What you have so beautifully written is a living eulogy, although I can understand if you don't see it as such!
    I feel your steps, moments of watching, waiting and breath-holding regarding your father's Parkinson's - my husband is 18 years into his and is moving to a wheelchair (temporarily, of course!). You are a good son and a practised listened; your father has taught you so many great life-lessons, and I find it so freeing to hear you talk of this - even though it costs you plenty! My husband started aged 49, so our sons were early teens. They never talk about it (at least to me). I wish they did.
    Thanks @Max๐Ÿ J. Carter, for the love you have for your father.
    David Navarro Lรณpez
    11/01/2017 #2 Anonymous
    #1 dear max, i found your post very interesting and want to add acomment later, when i have the time for it. Such a post worths taking the time to.
    Max๐Ÿ J. Carter
    11/01/2017 #1 Max๐Ÿ J. Carter
    Thank you @David Navarro Lรณpez for sharing this.
  3. ProducerLisa Vanderburg

    Lisa Vanderburg

    10/01/2017
    Ode to January and another new year, dagnabit.
    Ode to January and another new year, dagnabit.It is January. This is the time when there is no yesterday, there is no tomorrow, thereโ€™s only the now. It carries the awful threat of staying that way; I empathise with our ancestors who waited in the dark with fearful longing to see if the sun...
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  4. Josefina Ruiz

    Josefina Ruiz

    31/12/2016
    Josefina Ruiz
    Hacia una muela inteligente para luchar contra el pรกrkinson
    esmateria.com Un sensor que detecta los sรญntomas del pรกrkinson y un diente artificial capaz de liberar fรกrmaco constituyen el "proyecto mรกs prometedor" de la UE para mejorar la calidad de vida de los...
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  5. Deb ๐Ÿ Helfrich
    @Gerald Hecht - I would really appreciate it if you could offer some of your professional insights on this development and the new drug MSDC-0160, and perhaps help me translate what the drug does into some nutritional interventions for @Gary Sharpe to consider.

    http://www.msdrx.com/pipeline/msdc-0160
    Deb ๐Ÿ Helfrich
    New hope for Parkinsonโ€™s disease - VAI
    www.vai.org For the estimated seven to 10 million people living with Parkinsonโ€™s disease, thereโ€™s new reason for...
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  6. Max๐Ÿ J. Carter
    CANNABIS STOPS Parkinson's Disease Symptoms
    CANNABIS STOPS Parkinson's Disease Symptoms CANNABIS is a MIRACLE PLANT from Mother Nature !! Watch Medical Marijuana's effect on Parkinson's, Part 3 of 3. Aided by a fellow Parkinson's patient and...
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    Comments

    Deb ๐Ÿ Helfrich
    10/12/2016 #1 Deb ๐Ÿ Helfrich
    This video shows dyskinesia calming down in under 5 minutes after sub-lingual (under the tongue usage).
  7. Max๐Ÿ J. Carter
    Man With Parkinson's Disease Demonstrates The Relief He Gets From Medical Marijuana!
    Man With Parkinson's Disease Demonstrates The Relief He Gets From Medical Marijuana! Man With Parkinson's Disease, Can we get 1000 likes? Here's a link to my smoking videos https://www.youtube.com/watch?v=6FuadaVXjc8...
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    Comments

    Deb ๐Ÿ Helfrich
    10/12/2016 #1 Deb ๐Ÿ Helfrich
    This is the video to watch for the tremor effects.
  8. ProducerGary Sharpe

    Gary Sharpe

    22/04/2016
    How To Get Moving Again with Parkinson's Disease
    How To Get Moving Again with Parkinson's DiseaseAt the core of the concepts behind Out-Thinking Parkinson's is the understanding that the pathways to movement in the brain are manyfold and hence that, with the aid of the right diet and supplements together with the optimal environment and...
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  9. ProducerLisa Vanderburg

    Lisa Vanderburg

    15/11/2016
    Love hurts
    Love hurtsIt's Care-giver month again....think I'll have a nap. Don't get me wrong - for other carers, I care. I'm sure they do a stellar job and remain blissful, serene and contented. Well done!Alas, I'm the other type: bemused, confused and cranky with it!...
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    Comments

    Cyndi wilkins
    16/11/2016 #14 Cyndi wilkins
    #7 The wave hit hard...an ocean of emotion...I'm still picking the seaweed out of my hair...But I'm getting there;-) Yeah, that whole sickness and in health thing isn't all it's cracked up to be...Don't get me wrong...I love, honor and respect the kind of love that it takes to be a care giver...But sometimes it hurts like hell...experiences like this will awaken that sleeping dragon in anyone...I suppose if it were easy, there would be no lesson in it...We are all our own greatest teachers...sending you LOVE:-)
    Lisa Vanderburg
    16/11/2016 #11 Lisa Vanderburg
    #10 I hear you, @Irene Hackett! It seems wimmin are bent to this role; God love the male care-givers, but they are a rarer breed....must be the anticipation thing; we corral wobbling toddlers and crashing kids, so it's just an ergonomic problem :) Just for laughs: my father died in 2010 - I had been assisting my step-mother in his care. It was my night - his last. He was his usual cranky self (not in pain, mercifully) and was struggling to get out one side of the bed which was blocked, while I tried to steer him to the other side. He got so mad he had his final event. His last words were, 'oh SHUT UP woman!!'
    Deb ๐Ÿ Helfrich
    15/11/2016 #9 Deb ๐Ÿ Helfrich
    #8 As complex as it might be, he actually needs you to make sure you keep on living a full life - whatever that means to you!
    Lisa Vanderburg
    15/11/2016 #8 Lisa Vanderburg
    #5 You called it dead to rights, @Deb ๐Ÿ Helfrich! It crept up slowly - all this....mayhem. I think I have come to terms with my 'lot'. I have no illusions as to what the future holds, so I set my eyes on the goal: to be in control when the proverbial really hits the fan! After that, I imagine no more - it's not of consequence. That's not a sentimental statement or plan, it's merely the truth! To think my sister (years back) used to believe in reincarnation - ha! I'd say to her, 'who in their right mind would want to come back to this world of pain??' But I could think of less-lived lives!
    Lisa Vanderburg
    15/11/2016 #7 Lisa Vanderburg
    #6 Good Lord @Cyndi Wilkins - I am so very sorry for your angst. I can totally empathise when you say, ''The only saving grace for me is that he also suffers dementia and has no memory of what has happened to him...'' You HAD to put him in a nursing home: you had no choice, and I hope you're not still beating yourself up for that. I have the dubious benefit of having to care for my spouse until 'death do us part'. That gives me the onus to be both pit-bull and dragon for him (the upside :) ), and I apologise in advance for those that will feel my wrath should they ignore or neglect my charge! The lines are just too bleary when it's your parent - it warms my heart though; you're clearly mutual love.
    Cyndi wilkins
    15/11/2016 #6 Cyndi wilkins
    "But Iโ€™ll tell you whatโ€™s exhausting: anticipation. To have to be on full-alert for when heโ€™s going to โ€˜goโ€™ (potential fall), to know when heโ€™s going to crash into something or other requires a fair amount of following like a guard-dog." Oh dear Lisa....I feel this soooooo profoundly right now...I've been living this nightmare of dragons and demons ever since I found my dad one morning several weeks ago like a turtle on his back in the bath tub...He had a stroke as he was making his way to the bathroom in the night and fallen over...I thank God every day that he was still conscious and not severely injured, however the stroke took it toll...After several weeks of trying desperately to care for him at home I have had to make the heart wrenching decision to put him in a nursing home...The emotional backlash is like being dragged into an undertow and not being able to surface for air...The only saving grace for me is that he also suffers dementia and has no memory of what has happened to him...My heart goes out to you.
    Deb ๐Ÿ Helfrich
    15/11/2016 #5 Deb ๐Ÿ Helfrich
    From my humble perspective, embodying the dragon, for your own good, is the most sane approach. Get thee to someone who can begin to comprehend. It is isolating trying to explain something that is inexplicable.

    And self-care! I see the challenge so clearly. The need for vigilance. But that very vigilance is actually probably part of what created the situation to begin with. It will be reflected back on you at the most poignant of moments. After caring for weeks non-stop, the slightest diversion of focus will result in some sort of catastrophe either physical, or much, much worse, the allegation that insinuates that you have been selfish.

    In a very tiny, miniscule way, I can identify the cycle with my puppy days. It wasn't the damage to the objects being chewed so much as the inability to see chewing and swallowing as harmful that ravages the companion's mind, which is walking its own tightrope of sleep depravation. Wondering if there are any puppy-proofing sorts of options in your vastly more complex scenario?

    Caring about you from afar!
    Lisa Vanderburg
    15/11/2016 #4 Lisa Vanderburg
    #2 Thank you so much @Gert Scholtz! To be honest I don't know if I'm courageous, but I know a fella who has Parkinsons AND a dragon for a wife - he's got STONES :)
    Most grateful for your good wishes - I'll pass them on!
    Lisa Vanderburg
    15/11/2016 #3 Lisa Vanderburg
    #1 Oh, I am touched by your words and your wisdom my friend, @Ali Anani! I am so far from a super-anything, I look at amoebas in awe :)
    Life is one long prat-fall; a losing battle with decrepitude. It's the same for everyone - those with chronic disease (especially neurodegenerative) just KNOW they're losing earlier. Borrowing from your pensive and beautiful buzz, Adaptations to Emotional Flooding, I just have a little root-rot!
    Gert Scholtz
    15/11/2016 #2 Gert Scholtz
    @Lisa Vanderburg My best wishes to you and your husband Lisa. Your courage is truly admirable.
    Ali Anani
    15/11/2016 #1 Ali Anani
    I am deeply touched by your buzz @Lisa Vanderburg. Your story is full of anticipation and I understand fully your saying that anticipation makes us edgy. I almost "melted" like an ice cube while reading " I have strong opinions, but clearly more lily-livered about my own set of values, because the lines keep changing or blurring. They didnโ€™t always. If it appears Iโ€™m describing a stranger; weโ€™re getting closer"! This is a deep description of many of us and I am not sure I could ever expose my feelings so eloquently and creatively. I wonder how do you make the time to write and comment. You are a super human.
  10. Gary Sharpe

    Gary Sharpe

    07/11/2016
    Video record of first ever session with "Smovey Rings" part 2.
    Next I incorporated these into my dance therapy and walking exercise. I found they greatly assist, as I think the video clearly shows.
    Smovey Rings and Parkinson's Disease Part 2
    Smovey Rings and Parkinson's Disease Part 2 Video record of first ever session with "Smovey Rings" part 2. Next I incorporated these into my dance therapy and walking exercise. I found they greatly...
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  11. Gary Sharpe

    Gary Sharpe

    10/11/2016
    Day 3 exercising with [and without] "Smovey" Rings and the day after receiving my second treatment of K.O.R.E therapy from Tessa Donovan. I doubt anyone who has not followed my Journey of Resurrection from 7 years of degeneration into Parkinson's Disease would have a clue about my diagnosis from watching this. Indeed, this is the first time even I cannot see any of the tell tale signs.

    I cried when I watched this back with my Mum.
    Day 3 with Smovey Rings and Parkinson's Disease
    Day 3 with Smovey Rings and Parkinson's Disease Day 3 exercising with [and without] "Smovey" Rings and the day after receiving my second treatment of K.O.R.E therapy from Tessa Donovan. I doubt anyone who...
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    Comments

    Charles David Upchurch
    10/11/2016 #1 Charles David Upchurch
    Outstanding progress, @Gary Sharpe !

    I try to keep my comments and my excitement in check as I have seen you break through (or work around) one challenge after another. Sometimes your leaps forward cause me to forget the big picture.

    I realize, as you do, that you can't expect every day to be a breakthrough, yet every day you keep hope alive that you will at least maintain most of your progress to date, and--when the time is right--make another step (or leap) forward.

    I celebrate your struggle as much as I do your progress. You have given us all a lesson in focus, a lesson in being open to possibilities, a lesson in letting go of anger and pain, and a lesson in courage, friend.

    Happy re-wiring!
  12. ProducerLisa Vanderburg

    Lisa Vanderburg

    08/10/2016
    Yup. It's all about him.....
    Yup. It's all about him.....https://www.linkedin.com/today/author/0_0-YtfauRWrgykW1NKuvu6Q?trk=prof-smAnd that's where you can find all my snarky posts about Parkinson's Disease. I'm stepping out (from LI) awhile to test the waters. All you really need to know about me is that...
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    Comments

    Sara Jacobovici
    01/01/2017 #3 Sara Jacobovici
    Just started to follow you @Lisa Vanderburg. A belated welcome to beBee. Now, in my opinion there's snarky and then there's snarky.....Looking forward to reading your posts.
    Lisa Vanderburg
    08/10/2016 #2 Lisa Vanderburg
    oops...think I made a mistake - what's that plus & minus button? I thought it was 'like' :) Gimme another 20 years and I'll have it sussed! Thanks for turning me onto this, Deb!
    Deb ๐Ÿ Helfrich
    08/10/2016 #1 Deb ๐Ÿ Helfrich
    Welcome to beBee, @Lisa Vanderburg. We are having a great time buzzing around over here.
  13. Paul "Pablo" Croubalian
    I don't know if Gary shared this here, but all I can say is WOW

    This is amazing! Gary is fighting and beating Parkinson's.
    Support his efforts here
    https://www.amazon.ca/Out-Thinking-Parkinsons-Starting-Gary-Sharpe-ebook/dp/B01FJXOZUS/ref=sr_1_1?ie=UTF8&qid=1474473619&sr=8-1&keywords=out-thinking+parkinsons
    What You Won't See at the World Parkinson's Congress #wpc2016
    What You Won't See at the World Parkinson's Congress #wpc2016 Leadership on Parkinson's Disease isn't about talking about it, nor throwing good money after bad at it, nor giving us People with Parkinson's the false...
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    Comments

    Dorothy Anny
    30/12/2016 #14 Dorothy Anny
    My husband was misdiagnosed with PD in 2000. Very rapid deterioration and many queries eventually led to MSA (Multiple System Atrophy) diagnosis. A horrible, horrible condition robbing people of independence, dignity, movement, speech, continence, ability to swallow and breathe.we didn't know what to do we tried everything possible medically, we were waiting for his death then one day our daughter got back from work with the email of a herbal Dr saying her friend from work told her about a testimony on how Health Herbal Clinic cured her mom from PD and it truely worked, we were desperate and sceptical but my daughter told me we got nothing to loose and i decided to give it a try. 4 weeks after he started taking the herb he regained his speech and today my husband is fully rocovered from this deadly disease called PD, this isn't a BS it is real you can also contact Healtth herbal clinic on healthherbalclinic(AT)gmail(DOT)com or website on www(DOT)healthherbalclinic(DOT)weebly(DOT)com
    Gerald Hecht
    23/09/2016 #13 Gerald Hecht
    #11 @Deb ๐Ÿ Helfrich I don't know --regarding my related runners dystonia (much more limited in scope, I know) and in the continuing WAKE of the flood; I'm always spotting some new dust/dirt thingie which drives me crazy anyway like that last line of stuff that never makes into the dustpan...it quickly starts out as jazz bass and minimal drums with brushes...and really quickly becomes composition/choreography ; the first sweep is the hardest; but ihas a powerful draw if you are open to listening (it's not "medical medical")...but that's gonna happen when our little group finally shows 'em that emotional intelligence is a hindrance to medical progress
    Gerald Hecht
    23/09/2016 #12 Gerald Hecht
    #11 @Deb ๐Ÿ Helfrich the broom thingie (I mean old school floor sweeping broom) there's always something to sweep real quick inhale, sweep , exhale,...sweep sweep; that's not "medical medical". It's Fred Astaire coatrack medical/not medical fun
    Deb ๐Ÿ Helfrich
    23/09/2016 #11 Deb ๐Ÿ Helfrich
    #10 We all know it intuitively but any thoughts on how to make it clinically relevant? There are times when he cannot be prompted to take this medication as the freezing takes down the cognitive mind as well.
    Gerald Hecht
    23/09/2016 #10 Gerald Hecht
    #9 @Deb ๐Ÿ Helfrich indeed; that darned autonomic nervous system can lull us into forgetfulness: 1) heart and lungs: rhythm section 2) whistling and humming: melody, countermelody, harmony, all kinds of household instruments ๐ŸŽธ everywhere, glass vessels differently filled, brooms....3) polyrhythmic complexity with arms and legs... before you know it we're all "one person dancing bands"...we never stop composing either; it's a lifelong thang!
    Deb ๐Ÿ Helfrich
    23/09/2016 #9 Deb ๐Ÿ Helfrich
    @Gerald Hecht = music is pretty well known for generating emotion - but seems rather good at plain old motion too
    Jena Ball
    22/09/2016 #8 Jena Ball
    #7 Ooo let's keep in touch! Kids are great instigators in general. They bring out the child in others - however old their physical body is ;-)
    Deb ๐Ÿ Helfrich
    22/09/2016 #7 Deb ๐Ÿ Helfrich
    #4 @Jena Ball - we might have some thoughts on collaborating.... play is absolutely crucial in opening up our neuroplasticity and nobody is better at play than kids. One of the things @Gary Sharpe and I have in the hopper over the long term is a book about how kids/grandkids can help PwP's initiate movement with some mirroring - Simon says type games among other techniques.
    Gert Scholtz
    22/09/2016 #5 Gert Scholtz
    @Gary Sharpe Well done Gary! You are an inspiration. And quite a dancer too!
    Jena Ball
    22/09/2016 #4 Jena Ball
    I've been following how dance is being used to combat Parkinson's too. It's amazing how the brain will compensate given the chance. I am eager to read Gary's book and see what he has learned.
    Loribeth Pierson
    21/09/2016 #3 Loribeth Pierson
    Wow, that is a BIG change ! Keep up the great work... Sharing!
    Paul "Pablo" Croubalian
    21/09/2016 #2 Paul "Pablo" Croubalian
    Maybe we can get Lady Gaga on board. Gary seems to find her music perfect.
    Deb ๐Ÿ Helfrich
    21/09/2016 #1 Deb ๐Ÿ Helfrich
    Thank you so much, @Paul "Pablo" Croubalian! This shows a big change from only being able to lie on the couch - well if he managed to fall in the right way....
  14. Gary Sharpe

    Gary Sharpe

    01/09/2016
    Gary Sharpe
    Why There is More to Parkinson's than just Neuro-degeneration
    niume.com OK, World, here is your proof positive that Parkinson's is not just a "neurodegenerative condition" but that there is much more to it. The research results on walking with the disease which I present in this video I hope will be viewed as quite...
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    Comments

    Franci๐ŸEugenia Hoffman
    04/09/2016 #7 Franci๐ŸEugenia Hoffman
    Sincere, motivating and useful information. Thank you for bringing us along on your journey @Gary Sharpe.
    Lisa ๐Ÿ Gallagher
    02/09/2016 #5 Lisa ๐Ÿ Gallagher
    Wow very powerful. What a difference from January and seeing the video in the garden. I love the idea of the mosaic tiles, it seems they would/will be very helpful.
    Sara Jacobovici
    02/09/2016 #4 Sara Jacobovici
    @Gary Sharpe: "Humans can rewrite our own Stories."
    Sara Jacobovici
    02/09/2016 #3 Sara Jacobovici
    The reason I shared this in my Hive Metaphor is because @Gary Sharpe proves how his capacity to see beyond the literal can lead to transformations.
    Sara Jacobovici
    02/09/2016 #2 Sara Jacobovici
    @Gary Sharpe: "I share this for the same reason I share all my posts - to Inspire, Motivate and Demonstrate that there is always Hope and through Loving Kindness we Humans can rewrite our own Stories."
    Deb ๐Ÿ Helfrich
    01/09/2016 #1 Deb ๐Ÿ Helfrich
    These interlocking floor tiles are really great ideas for using vision to trigger movement in people with Parkinson's.
  15. Gary Sharpe

    Gary Sharpe

    26/08/2016
    Trailer for "Out-Thinking Parkinson's: The Journey", a Film by Gary Sharpe and Deb Helfrich
    Trailer for "Out-Thinking Parkinson's: The Journey", a Film by Gary Sharpe and Deb Helfrich http://www.outthinkingparkinsons.com/downloads/ "Out-Thinking Parkinsonโ€™s: The Journeyโ€ is a compelling, inspirational and educational film, not only about...
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    Comments

    Deb ๐Ÿ Helfrich
    26/08/2016 #9 Deb ๐Ÿ Helfrich
    #5 @Vincent Andrew - we are so grateful for your encouragement and willingness to share throughout your network!
    Deb ๐Ÿ Helfrich
    26/08/2016 #8 Deb ๐Ÿ Helfrich
    #3 We do so appreciate your constant support, @Sara Jacobovici thanks for sharing here and there.
    Deb ๐Ÿ Helfrich
    26/08/2016 #7 Deb ๐Ÿ Helfrich
    #2 Thanks, @Irene Hackett, we so appreciate your kind words.
    Deb ๐Ÿ Helfrich
    26/08/2016 #6 Deb ๐Ÿ Helfrich
    #1 Thanks for that pointer, @Dean Owen, I also agree that we need to shorten the trailer. We've got a lot of footage, input from others, including their own video experiments and some interesting hypotheses that will ultimtately. We'd love to get connected with anyone in the documentary business for some mentorship on next steps!
    Vincent Andrew
    26/08/2016 #5 Vincent Andrew
    This video is remarkable! Thanks for sharing your story @Gary Sharpe and @Deb ๐Ÿ Helfrich. Wishing you both success. I am sharing this on Twitter and Googles+.
    Sara Jacobovici
    26/08/2016 #4 Sara Jacobovici
    Compelling, Inspirational and Educational; these words begin to describe the film and the people who made it!! Bravo @Gary Sharpe and @Deb ๐Ÿ Helfrich wishing you both all the success!!
    Sara Jacobovici
    26/08/2016 #3 Sara Jacobovici
    Compelling, Inspirational and Educational; these words begin to describe the film and the people who made it!! Bravo @Gary Sharpe and @Deb ๐Ÿ Helfrich. wishing you both all the success!!
    Dean Owen
    26/08/2016 #1 Dean Owen
    A seriously important video that I hope goes viral. Nicely done Gary. I seriously hope that people will watch the whole video. Such is the weird society that we live in that many will turn off within the first minute. They need to see what happens at 1 min 14 secs, then they will want to watch the rest.
  16. ProducerDave Rynne

    Dave Rynne

    23/06/2016
    When someone you love has Parkinson's Disease
    When someone you love has Parkinson's DiseaseMy grandfather had Parkinson's Disease ย for as long as I can remember. As I got older it got worse for him, I was still young and I remember laughing along with my cousins when he tried to sip his coffee. He always used a saucer and I can remember...
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    Comments

    Max๐Ÿ J. Carter
    23/06/2016 #11 Max๐Ÿ J. Carter
    #8 @Deb ๐Ÿ Helfrich and @Gerald Hecht I do something similar.
    Max๐Ÿ J. Carter
    23/06/2016 #10 Max๐Ÿ J. Carter
    Great piece. My dad has Pd and has seen Michael J. Fox as an inspiration that has kept him going.
    Gerald Hecht
    23/06/2016 #9 Gerald Hecht
    #8 @Deb ๐Ÿ Helfrich just like Todd Rundgren, actually, apparently just like me, I remembered what you remembered I was remembering
    Deb ๐Ÿ Helfrich
    23/06/2016 #8 Deb ๐Ÿ Helfrich
    #6 I am a synthesizer. I can't keep up with the pace of the internet, but once I have learned something, I can explain it and funnel it out to usable information.
    Gerald Hecht
    23/06/2016 #7 Gerald Hecht
    #5 @Gary Sharpe thank you and you're welcome , I gotta get out of this pressing yet useless meeting
    Gerald Hecht
    23/06/2016 #6 Gerald Hecht
    #4 @Deb ๐Ÿ Helfrich wow, I really am in a in haste situation ; how did you even do that?
    Gary Sharpe
    23/06/2016 #5 Gary Sharpe
    #4 and I am the living proof of what @Deb ๐Ÿ Helfrich just said. I still have bad days (having one today), but eating enough calories, keeping the blood sugar up and drinking plenty of water is so important when re-starting to move again. The problem with Parkinson's is the signals between body and brain get all messed up so we tend not to "get" that we need fuel or water or oxygen! Thanks @Gerald Hecht - back at you
    Deb ๐Ÿ Helfrich
    23/06/2016 #4 Deb ๐Ÿ Helfrich
    @Dave Rynne - what @Gerald Hecht is alluding to is some of his old research on exercise. It is absolutely, positively the case that despite all the signals from the brain to stop moving, that it is important to continually build in a routine of movement. There are a number of levels here. First of all, just succumbing causes degeneration in all the muscles, tendons, etc of the body to become rigid and weak, exacerbating the symptoms. Then there is the oxygenation that occurs when we focus on movement, which doesn't need to be anywhere near what we commonly consider 'exercise'. Finally, movement and keeping busy reduces stress at a biochemical level because stress uses dopamine.

    Movement is the Definition of Life and even though all the signals are asking him to stop moving, it is utterly important to continue moving through the stiffness, rigidity, tremors, and tics. This needs to be a conscious daily decision in the arsenal of living with PD and is something that it is crucial for the caregiver to be firmly dedicated to supporting. I would be honored to talk with your mom if she is interested.
    Gerald Hecht
    23/06/2016 #3 Gerald Hecht
    #2 @Gary Sharpe in haste, thank you for all you do!
    Gary Sharpe
    23/06/2016 #2 Gary Sharpe
    Thank you for helping raise awareness and this honest look at the impact of Parkinson's @Dave Rynne. Our resource which @Gerald Hecht mentioned is here www.outthinkingparkinsons.com - I also have created a Parkinson's Hive here on beBee and will share your post there.
    Gerald Hecht
    23/06/2016 #1 Gerald Hecht
    @Dave Rynne I have also found some EXCELLENT info from @Gary Sharpe and @Deb ๐Ÿ Helfrich my dopamine stuff is changing my way of thinking about this; but it's still germinating
  17. Donald Grandy

    Donald Grandy

    16/06/2016
    Cycling for Freezing Gait in Parkinson's Disease
    Cycling for Freezing Gait in Parkinson's Disease A 58-year-old man with a 10-year history of idiopathic Parkinson's disease presented with an incapacitating freezing of gait. However, the patient's ability...
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  18. Gary Sharpe

    Gary Sharpe

    01/06/2016
    I was asked to share this info about a new development to help with tremors, and I am delighted to do so.
    Gary Sharpe
    Fawad Bhatti
    www.outthinkingparkinsons.com I hope you are doing well. I really appreciate the work you are doing for Parkinson's community. Sadly, my family had also been affected by Parkinson's disease, so I have been working on trying to make the lives of my family and millions of...
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  19. Gary Sharpe

    Gary Sharpe

    27/05/2016
    https://www.linkedin.com/pulse/prelude-parkinsons-disease-gary-sharpe
    Gary Sharpe
    Prelude to Parkinson's Disease
    www.linkedin.com Losing Myself: Garyโ€™s Prelude Sometime in 2009 to July 2015 My name is Gary Sharpe. In 2009 (the exact date escapes me) I was diagnosed with Early Onset Parkinsonโ€™s Disease. This is the story of how...
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  20. Gary Sharpe

    Gary Sharpe

    21/05/2016
    outthinkingparkinsons.com/resources/library
    In this article I have collected together a number of resources and case studies which demonstrate unequivocally that inevitable decline is simply not true and that there is always the possibility of hope. These then are the stories of our fellow travelers who've already escaped from both Parkinsonism and the falsehoods of the medical diagnosis narratives, or are helping others to do so.
    Gary Sharpe
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    Comments

    Cyndi wilkins
    22/05/2016 #2 Cyndi wilkins
    An amazing collection of resources for anyone struggling with disease.
    Gary Sharpe
    21/05/2016 #1 Gary Sharpe
    www.outthinkingparkinsons.com/resources/library
  21. Gary Sharpe

    Gary Sharpe

    19/05/2016
    www.outthinkingparkinsons.comGary Sharpe
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  22. Gary Sharpe

    Gary Sharpe

    19/05/2016
    Learning to Walk Again with Parkinson's Disease and a Pair of Fitflops
    Learning to Walk Again with Parkinson's Disease and a Pair of Fitflops People with Parkinson's tend to shuffle when we "walk". We take very small steps, hardly lifting our feet off the floor at all. We often trip over things...
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  23. Gary Sharpe

    Gary Sharpe

    14/05/2016
    Gary Sharpe
    The News of the Century About Parkinson's
    www.linkedin.com BIG NEWS! This has taken me 4 months of full time effort, knowledge assimilation, building the confidence of my own evidence. This is not something anyone can do overnight - the underlying injury...
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  24. Gary Sharpe

    Gary Sharpe

    10/05/2016
    Gary Sharpe
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  25. Gary Sharpe

    Gary Sharpe

    05/05/2016
    The Sleeper Awakens.

    As I write this it is four months to the day since Deb and I started the Out-Thinking Parkinson's project. Throughout this time, Deb has repeatedly challenged me to answer this question:

    "Why do you think you developed Parkinson's?"

    Deb's question is not really about the medical reasons for my Parkinson's diagnosis, but seeking the deeper truths of what it actually means to have Parkinson's. Until very recently, I had no answer. But as I've improved my condition, both mental and physical, I'm more able to tune in to what is actually happening in my mind and body when the Parkinson's takes hold. As I've pushed the envelope of my understanding and incorporated more interventions into my own life, tested, tried, self-experimented, it has become clearer to me.

    The answer to Deb's question is, for me, a Very Uncomfortable Truth. While I have no idea why my Parkinson's started, what biological or environmental factors caused it, looking back now, I believe I understand why it developed and progressed so quickly....

    Read more: http://www.outthinkingparkinsons.com/articles/wakeup
    Gary Sharpe
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